I know it was taken off the list so I tried to word my comment carefully. Given the details of my history, I'm convinced that it was a factor for me. Of course, I might be wrong, but in view of my experience and family history I suspect that for a few genetically susceptible individuals the risk that modest consumption of alcohol poses for the nerves might be underestimated. Much as I'd like to have an occasional glass of wine, I have given up drinking alcohol altogether. I wonder if there might be a difference in regard to alcohol sensitivity between the different types of CMT. Do you happen to know of any research on the topic and/or the background of the decision to remove alcohol from the list? Also, in view of what Mrs. D. said, the particular type of alcohol (red wine) and/or B1 status might have been factor(s) for me.

They tell you to consult your physician concerning alcohol and your particular situation. Everyone is different. They do update the list often. They encourage people to contact them. Alcohol was taken off the list in July of 2004.

Sensorimotor axonal polyneuropathy seems to be what you have posted. There doesn't appear to be a definite diagnosis of CMT. Correct?

Yes, that is correct. I was diagnosed with idiopathic sensorimotor axonal polyneuropathy. The neurologist had a strong suspicion of CMT, due to the exam and nerve conduction test results along with the context of deformities of the feet that I have had since birth (partially corrected by casts during infanthood). He said it was very likely that I have CMT but discouraged me from pursuing further evaluation. A podiatrist and a physical therapist who specializes in people with deformities of the lower extremities also told me that they thought it very likely that I have CMT. I was diagnosed with club feet at birth, but in the wake of my neurological problems, I've been told that was likely a misdiagnosis and that my deformed feet are most likely due to CMT. I'm researching to find a neurologist who is interested in investigating this because I think it could be important for me and others in my family to be sure, especially because of the risks of drugs on the list for people with CMT.

I only just discussed this topic with my doc and nuero. Both agreed it is very very difficult to quit, they also agreed with my desire to have a few and I really mean as few, not 10 not 50

so I still have 3-4 beers some nights and no ill effects or change in PN symptoms however let me say that I was a chronic alcoholic my whole life and 3 beers never even registered back then