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Old 04-17-2013, 02:28 PM #13
Laurell Laurell is offline
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Join Date: Apr 2012
Posts: 16
10 yr Member
Laurell Laurell is offline
Junior Member
 
Join Date: Apr 2012
Posts: 16
10 yr Member
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Yes, that is correct. I was diagnosed with idiopathic sensorimotor axonal polyneuropathy. The neurologist had a strong suspicion of CMT, due to the exam and nerve conduction test results along with the context of deformities of the feet that I have had since birth (partially corrected by casts during infanthood). He said it was very likely that I have CMT but discouraged me from pursuing further evaluation. A podiatrist and a physical therapist who specializes in people with deformities of the lower extremities also told me that they thought it very likely that I have CMT. I was diagnosed with club feet at birth, but in the wake of my neurological problems, I've been told that was likely a misdiagnosis and that my deformed feet are most likely due to CMT. I'm researching to find a neurologist who is interested in investigating this because I think it could be important for me and others in my family to be sure, especially because of the risks of drugs on the list for people with CMT.
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