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Old 10-21-2013, 08:33 AM #11
Synnove Synnove is offline
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I have feeling of pins and needles, electrical current like vibration in arm, It has progressed to numbness in feet and now up the legs a little bit. Sometimes my whole arm goes numb and spastic, called parasthesia. The numbness in feet caused my hwole legs to feel heavy and clubsy. I have balance problems due to autonomic neuropathy.
The internal "vibration" " buzzing" is still there. I am going to the neurologist tomorrow will have him explain it a little bit more. But he said it is due to the small fiber neuropathy. And when t=you think of it, those small fibers are every where in our body, supporting all our internal organs and every thing. I finally had to go to the Mayo Clinic, because I felt I got no answers, some doctors said I had anxiety. Ofcause, who would not be anxious, when something is vibraring inside. Mayo Clinic has diagnosed it with Ideopathic peripheral neuropathy, ideopatic small fiber neuropathy and autonomic neuropathy. Ideopathis means they do not know the real cause of it yet, but I hav constant new tests to find out what other outoimmune disease it could be. The Mayo Clinic said for now, we have to treat the symptoms, so they have me on Lyrica and Amitriptyline. That combination of anty seizure med and antidepressant med is recomended for this pain, and it works
But they also said the vasculitis is one cause of the neuropathy
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Old 10-21-2013, 08:41 AM #12
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Hi again, to
I will add, I am 64 years old woman, and due to all this neuropathy ill ness I lost my job, not able to do my usual occupation. Yes, they do treat the symptoms with medication, but it is important to try to find the cause. Some causes can be treated, other can not. But I tell you this, neuropathy of any kind is horrible.
Mrs.D can tell you about the different kind. Some can be treated, some not.

I want to give you this link. The president of the site will personally reply to you. in a few days
Here is the web site, try it
www.NeuropathySupportNetwork.org
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Old 10-21-2013, 08:49 AM #13
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Yes, I can feel for you. It is very difficult to have PN.

Are you trying the epsom salts or Epsom Lotion by Morton's?

This may help with circulation, and also block the pain receptors (NMDA). This can help when oral magnesium can't get to certain targets because of poor blood flow.
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Old 10-21-2013, 08:56 AM #14
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Yes, Mrs D. I use the Epsom Salt periodically. I also use a compound cream prescription from the doctor, containing Lidocain and
gabapentin, I use it 2 or 3 times daily on feet and wrists. It helps, but it is expensive, insurance will not pay for it. $ 50 for a tiny little tub.
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Old 10-23-2013, 10:51 AM #15
MissyCholaTone MissyCholaTone is offline
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it maybe what ive been expierencing called Neuropathic Spasim Waves shinking and painful burning in limbs arms hands feet...makes u feel like youre seasick
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