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Old 10-21-2013, 08:33 AM #11
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
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Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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I have feeling of pins and needles, electrical current like vibration in arm, It has progressed to numbness in feet and now up the legs a little bit. Sometimes my whole arm goes numb and spastic, called parasthesia. The numbness in feet caused my hwole legs to feel heavy and clubsy. I have balance problems due to autonomic neuropathy.
The internal "vibration" " buzzing" is still there. I am going to the neurologist tomorrow will have him explain it a little bit more. But he said it is due to the small fiber neuropathy. And when t=you think of it, those small fibers are every where in our body, supporting all our internal organs and every thing. I finally had to go to the Mayo Clinic, because I felt I got no answers, some doctors said I had anxiety. Ofcause, who would not be anxious, when something is vibraring inside. Mayo Clinic has diagnosed it with Ideopathic peripheral neuropathy, ideopatic small fiber neuropathy and autonomic neuropathy. Ideopathis means they do not know the real cause of it yet, but I hav constant new tests to find out what other outoimmune disease it could be. The Mayo Clinic said for now, we have to treat the symptoms, so they have me on Lyrica and Amitriptyline. That combination of anty seizure med and antidepressant med is recomended for this pain, and it works
But they also said the vasculitis is one cause of the neuropathy
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