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Old 04-22-2013, 08:37 PM #1
Susanne C. Susanne C. is offline
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Susanne C. Susanne C. is offline
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Oh my, whatever you do, stay off the statins!
I was on Tricor for about three months, lost all sense of balance, fell three times trying to walk up to the high altar with my husband and son for my youngest's first communion, even with a cane.
My neurologist, who was new at that point and very careful about contradicting anything my PCP had prescribed said rather coyly "you might want to stop taking that".
I improved dramatically. In fact while I am weaker now, four years later, my balance has never gotten as bad as it was on the Tricor.
I believe statins and triglyceride meds are contraindicated in all PN cases, but for CMT'ers they are pure poison. Lots of info on statins on this forum.
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Old 04-23-2013, 12:44 PM #2
karsten karsten is offline
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Quote:
Originally Posted by Susanne C. View Post
Oh my, whatever you do, stay off the statins!
I was on Tricor for about three months, lost all sense of balance, fell three times trying to walk up to the high altar with my husband and son for my youngest's first communion, even with a cane.
My neurologist, who was new at that point and very careful about contradicting anything my PCP had prescribed said rather coyly "you might want to stop taking that".
I improved dramatically. In fact while I am weaker now, four years later, my balance has never gotten as bad as it was on the Tricor.
I believe statins and triglyceride meds are contraindicated in all PN cases, but for CMT'ers they are pure poison. Lots of info on statins on this forum.
I never took statins, but had fairly high cholesterol. I started taking one cayenne pepper pill with each meal about 2 years ago. You have to take it with the meal or you will be sorry. My levels dropped from over 200 to 135. Google search it sometime. I know it made a difference along with exercise and diet. They say it acts like a scrubber and helps remove it from the arteries. Natural solutions can be the best solution.
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Old 04-24-2013, 01:55 PM #3
inspirations inspirations is offline
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A cayenne pepper pill. Hmm, I think I'll try this. Does it affect GERDs? I have issues with that too.

Yes, Susanne, I've been off statins for several years. I have no idea what my cholesterol readings are now--they used to be really high. But, I've done pretty well without the statins. I was miserable on them.
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Old 04-25-2013, 05:26 PM #4
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A cayenne pepper pill. Hmm, I think I'll try this. Does it affect GERDs? I have issues with that too.

Yes, Susanne, I've been off statins for several years. I have no idea what my cholesterol readings are now--they used to be really high. But, I've done pretty well without the statins. I was miserable on them.
Possibly..... I have GERDS as well. I think that was part of my PN problem because of taking Prilosec which is an acid blocker. I have stopped taking Prilosec for some time now. I changed my diet along with taking supplements and it has helped. Also, taking organic apple cider when I need to. Sometimes the pill can cause a little heartburn. Take it with a meal and you should be fine.
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Old 04-25-2013, 05:30 PM #5
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For those who have intolerance to nightshade foods/veggies, cayenne pepper may not agree with them, and actually make the burning worse.
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