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This is my first post but I've been reading posts for a while. I have Peripheral Neuropathy as you probably know since I'm here.
I'm 52, & see my GP & Neurologist. I've had multiple testing done- extensive labs, EMG & a Circulation Study (I have redness on my feet too so the neuro thinks I have circulation issues but my GP thinks its a rash. I don't think it's either one, I think it's a Neuropathy symptom. Diabetes, pre-diabetes & B-12 deficiency were ruled out. I'm within normal weight range, fairly good diet, & walk about 3 times a week so this was really out of the blue. The Neuro has classified my PN as idiopathic without known cause. The symptoms of PN are so hard to juggle & treat because there are so many of them! e.g. pins & needles, burning legs/feet, the crawling itch that feels like tiny ants or other little crawing things have built a home under your skin! Then there is the soreness in your muscles, & feet that feel like you are walking on the bones without any padding. That's one symptom that I haven't found a solution to. I wear good shoes, New Balance brand walking shoe, which I've read is Neurologist recommended for feet & leg problems. The Neuro put me on Gabapentin. As symptoms broke through between doses, she upped it to where I am now, 600 mg 3x a day. She has mentioned raising it higher but ai'm trying not to do that yet. This is a lifelong disease from what I've read, why rush immunity to my med right? I am prolonging that as much as I can. Recently she put me on a compounded cream because the itch will break through plus my muscles get very sore in my calves or thigh. The cream is Ketamine/Gabapentin/Amitriptyline. At my last visit she approached the idea of water therapy for my muscle soreness & a med that she can give me but I told her if the cream doesn't help, I'll try those. I want to give the cream a chance. I've seen some mild improvement in the soreness, not a magic lotion but it is helping somewhat, Has anyone had water therapy help their muscles? I dont really even know what it is although ai enjoy swimming when ai get a chance to. I didn't ask her what this muscle pill is. I hate taking pills but if my muscles don't get much better, I guess I will have to take another med. I don't take many, just gabapentin & a BP pill but I really hate to take pills. I prefer to try non medicinal approaches first. Sorry this is long, I gave most of my history with PN though. Thank you for letting me vent a little about my own experience with PN. It feels good to know that I'm not alone going through these crazy pains, even though I wouldn't wish this on anyone. |
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