Junior Member
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Join Date: May 2013
Posts: 57
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Junior Member
Join Date: May 2013
Posts: 57
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New to site
Hi. I posted in the introduction earlier. I have been reading for a while. I was recently diagnosed with autonomic and sensory genetic neuropathy. Remembering back to my twenties was probably when my feet became completely numb. Told several doctors they all dismissed it as a quirk. So I started to as we'll. I am now 35 and just diagnosed in the last few months. My gastroenterologist is the one that sent me to the neurologist. I thank God for him. Had MRI done and emg. Found I had sensory nerve damage dissipated throughout my body. He said it was extremely rare and not good for my age. The genetic part we are not sure exactly where it came from. Had tons of blood work done. Vitamin D was low and my vitamin b 6 was nonexistent. (Dr. Stated that) so I am on both of those. It has affected my hands. I found a website and ordered some pens so I could hopefully stop dropping them so much as well as a device to help me button shirts. Dr. Said there is no treatment but we will treat symptoms as the come. My feet are constantly freezing. I feel like there is something on them at all times. Sometimes at night the sheets being on them make them hurt. My hands constantly tingle. I have burning in legs on occasions. Massive foot cramps, and random back aches like last night that can almost bring tears. Trying to cut out sugar. Exercising more. This disease is very unknown as far as what to expect, I am not fearful and am taking it as it comes. I truly feel God has prepared me for this. But it would be nice to have others to talk to about the randomness or constant issues we deal with that understand because they re walking through it to.
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