Hi,

We live in Pretoria and my son has also been diagnosed with superifical siderosis. He had an accident in 2010, and has now gone downhill since May. Proffessor Louis Hoffmeyer diagnosied him, I have not been able to find out to much about it, but he did give me an article which is relevant to Stevens' condition.

If you send me an email address I can forward it to you.

He has had a few good days but today is a bad day again, no balance, nausea etc.

We were warned that his hearing is going to deteriorate but no one can say how quickly. He is now talking louder and louder and is often like a hyperactive puppy, following me everywhere and repeating everything he has already said.

It gets upsetting to me to see it and if I tell him he is repeating himself he gets cross.

But at least he is still with us, all things considered.

Speak to you again,

Regards
Liza Joubert