Well I am in bed again,because of my legs and the pain. You know what's really funny? Everybody sees what kind of pain I am in and that my walking gets worse everyday,jet I am expected to do my daily routine of doing the household getting the kids ready for school in the morning doing breakfast,lunch and dinner,amazing,homework,bath time and bedtime. Every second weekend we get the other 2grandkids,which ads more work for me well this is the weekend and at this point and time I have no idear of how I am to do this. I am at a point in my life where I should have my family to fall back on to but that is just a nice thought nothing more,they will hate me for what I am getting ready to do,I will have to tell them that they are going to take the kids to babysitters and other programs so that I can apply for some help for me. Well I am going to stop right now but will remain logged in.

It sucks.

What else is there to say? PN sucks.

Yesterday I had to make the decision to offer to quit my job because one of the locations they rotate me to is not well air conditioned and because it gets so hot, it irritates my pn and makes pain and flares frequent. I don't know if I will lose this job since its required everyone rotate positions. For now she just said ok and will let me know.

Im sorry for your situations. I feel bad for every PN person who lives with it. It's so hard to learn how to live with it. For me, God is my salvation and without Him, I would be lost. In my worse moments He lifts me up.

Hope your situation improves.

Its hard to take care of everyone else when you can barely take care of yourself. I noticed that I am completely anxity ridden when too much is asked of me. Running errands is hard. Sometimes you just have to shut down and say "NO"

I have told my family over and over that they need to help out more. My latest is that I can't help with dishes because I'm afraid I'm going to break something. I'm twitching (due to magnesium, because my med depletes it, and I am taking suppliments for it) and the dishwasher is broken right now. The kitchen is a mess, but they don't want to have broken dishes, right? I tried to get my 10 yo to wash them and she did a horrible job. I remember hand washing dishes at her age and before, but her entitled butt won't help as much as I argue with her about it (she has mild autism too).

This all sucks horribly. And when you think maybe you have it handled a little, the symptoms get worse or just different. Or you have flares.

Right now I can do the laundry, I still cook when I can (my husband can't cook), I can pick up things around the house but it hurts to scrub. We have a garden and I can only do so much. I'm still waiting for my husband to finish pounding in the poles for my beans and cucmbers, but I did get the corn planted last weekend, albeit slowly.

At least my daughter is old enough to do a lot on her own, like get simple food or pick up after herself. She's just a pain and not helping more. I really want a maid!!

I am feeling so bad I could cry and scream at the same time,I am in so much pain with my legs and feet I just don't know how I am going to make it thru the night I can barely put my legs down especially my left leg,I am sick to my stomach and have a fever of and on. My husband wanted to know if I wanted to go to the ER,and I said yes so in the mean time his buddy called needing him to go to a job site with him,so I am at home with 3grandkids and dinner to take of,awesome.I wanted to add that my fingers are getting stiff and very hurt full.