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Old 05-04-2007, 07:23 AM #1
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I'm so sorry you're having such a rough time, so much pain. I can relate to that. Only my pain wasn't physical. Please, see your doc and tell him exactly how you're feeling. You need to see a pain specialist. And if your doc isn't taking you seriously, after all you're the one that has the pain, get a new doc.

From what I've seen here many of the people are well versed in PN. Many of them have great ideas. This is where I found out about the B-12 that has made such a huge difference in my PN.

My heart goes out to you. I can *really* feel your pain. And not being able to sleep is the worst. That's what drove me to researching so intensely.

Please, get help now! You're a valuable person who's touched many lives even if you're not aware of them all. Don't give up or in. Get help!
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Old 05-04-2007, 07:50 AM #2
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Default Please hang in there

There are many different pain medications available for neuropathic pain; please find a Dr who will work with you to find a combination that works for you. There will be a combination of medications that will get your pain levels down; find a Dr how will help you find what will work for you.

I understand how you are feeling, when the pain is overwhelming and is preventing sleep everything seems worthless. I felt angry, hopeless, and helpless when my pain started. You will find a lot of support here from people who understand what you are going through. Please post and let us know how you are getting on.
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Old 05-04-2007, 08:55 AM #3
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Lightbulb I think all of us can understand this desperation...

I always become upset when I see it in print like this, that another is suffering
so much!

I have a thought. Now while this is late in the game ..very late...it is still
worth considering:

Hyperbaric oxygen treatment:
Quote:
Ulus Travma Acil Cerrahi Derg. 2005 Apr;11(2):172-7. Links
Adjunctive hyperbaric oxygen therapy contributes healing in electrical injury: a case report of high voltage electrical injury.

* Cimsit M,
* Aktas S.

Istanbul University, Istanbul Medical Faculty, Department of Underwater and Hyperbaric Medicine, 34390 Capa, Istanbul. cimsit@mail.com

In electrical injuries, new treatment modalities and guidelines are needed for improving clinical outcome and the survival of damaged tissue. Although there is no published study about hyperbaric oxygen (HBO) therapy for electrical injury in the literature, it is indicated in conditions, which may contribute to the clinical presentation of electrical injury such as thermal burns, crush injuries, necrotizing soft tissue infections, problematic wounds and compromised skin grafts and flaps. An 11-year-old child with high voltage electrical injury treated with adjunctive hyperbaric oxygen for 90 minutes twice a day at 2,4 ATA for one week, then once a day for six days for a total of 20 sessions was presented to demonstrate the beneficial effects of hyperbaric oxygen therapy initiated before irreversible damage had taken place. Although hyperbaric oxygen therapy was initiated rather late, when the most effective window for intervention had already past, HBO was effective in fighting against necrosis, infection and tissue loss. Adjunctive HBO therapy is suggested for electrical injuries for its contribution to healing. In order to see the favourable effects of HBO, it is better to start the treatment within the first 24 hours following injury.

PMID: 15877252 [PubMed - indexed for MEDLINE]
It has been several years since your accident. Have you done anything to try to heal the nerves? Drugs given by doctors do not heal.
One new RX vitamin preparation is Metanx.
Combined with fish oil, you may repair. Since you have feeling..that means the
nerves are not dead, and may heal, but that takes time.

Also do you not say what you have tried... for example...have you tried
Lidoderm patches, or Lidocaine ointments?

Each of us has our own stories and experience with pain. Somewhere here will be something that may help you. (the drug Mexiletine may work for you--it is usually tried in extreme refractory cases).
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Old 05-04-2007, 09:59 AM #4
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Red face

Quote:
Originally Posted by electrocuted View Post
I was electrocuted in 2002 and the nerves were fried in the soles of both of my feet. I do not have diabetes but I do have debilitating neuropathy in the soles of both feet. The Lyrica no longer provides relief. I have spent many long hours at night trying to get some sleep while I feel like I am standing in boiling oil and having nails driven into the soles of my feet. I would normally never consider taking my own life but sometimes when I am enduring this severe pain, I am unable to think clearly and I have come close to taking that irreversible step. I currently take 1,500 mg of Lyrica in AM and 750 mg at night. No physician will prescribe these amounts for me so I am always running out and waiting in agony for the next refill. I may not be alive when you read this. The pain has devastated my life and my will has been weakened greatly.
I can only imagine the pain you are experiencing e as most of us can. Pain really does cloud our thinking and makes all our days and nights gray. I am so sorry you have to endure this, nerve pain is one of the worst, I have have injuries in my life that have damaged nerves and it took a long time for them to heal but they did. During my suffering I too felt like ending it all.

I once touched a lamp that was metal and wet and got stuck to it. I had to pull my dead arm and hand off of it using my whole body. My arm fell limp and had pain after that for a few years. I tried so many things to relieve the pain and got varying degrees of relief but it was such a struggle. I dare not even try to suggest anything because you have probably already tried them. You do need to find a Medical doctor who will help you as so many posters have suggested. I don't use pain meds much myself but of late I hear advertised on T.V. "Pain Management Centers" They say "We will find the source of your pain and if there is a cure we will offer it." I'd give that a shot. They probably have connections with doctors in your area who can help you. Yes, PAIN Sucks. Trying to find a doctor on your own is hard enough when your well and pain free, you need a whole bunch of people who can work on your behalf.

I will be watching this thread. I hope you will find the correct solution to this terrible problem. Your NOT alone.
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Old 05-04-2007, 03:55 PM #5
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Electrocuted,
You've been given much sound advice here. I have nothing to offer in addition, except that I feel for you and hope that you really will not do as you've contemplated.
Mrs D's hyperbaric advice seems sound.
I noticed that you are in Harper's Ferry. I've been there many times. Nice little town, but not a whole lot of docs that would be of a specialist nature to try to help you through the pain. Understanding is a necessity when it comes to our docs who are treating us.
May I suggest a few hours drive to either Baltimore, Richmond, or D.C.? There you would have large, major hospital centers that could treat your problems with a myriad of treatments.
Balto. has a good pain clinic run by the anesthesiology dept at Johns Hopkins. I've been there, they're thorough.
Please hang in there.
There is help for your pain, but I think you have to travel a coupla hours
to find it. I recommend the neurology dept, & pain clinic at Johns Hopkins highly.
We're here to help in any way we can. Please come back and tell us how we can help you, or if we already have.
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Old 05-04-2007, 03:58 PM #6
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God, Please help electrocuted with his pain. Amen
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Old 05-04-2007, 07:17 PM #7
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Default Not good

This is a worry. I wish he/she would respond to what has been written in some way.

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Old 05-11-2007, 11:50 AM #8
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I just noticed the number of "views" for your post here. Quite a few more than the average. I think that is a sign of how many of us who may not be suicidal have still thought of the time when we might be at that point if things keep getting worse.

Thank you for in spite of your pain taking the time and trouble to post. I think there is a high probability that you have helped someone else knowing at the very least they aren't alone.

I would like to echo what others have said, you MUST take care of yourself. Given the limited energy you must have with all the pain, please try to prioritize and try to get the best care you can. That is all we can do. Sometimes that is so tedious and difficult, adding more stress to our already very stressed-out lives but keep the big picture in mind, you MUST keep trying the best you can to take care of yourself by finding responsible medical personnel. Sometimes that search can be frustrating.

But please reach-out wherever you can. Don't give up. Thanks for reaching out here and let us know if there is anything we can do.
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Old 05-11-2007, 10:18 PM #9
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Default Hello Electrocuted

I was wondering if anyone had tried you on any Klonopin? I know there are some who don't care for this drug, but I have taken this now for quite some time and it does help with pain. I think it is reasonably inexpensive, but cannot recall exact cost, since insurance pays here.

It is in the Benzodiazepine family, thus can be addictive, although probably not nearly as much as Ativan or Valium. It does help with pain. I take it twice daily. It is difficult to get off of, and must be tapered down slowly. This may or may not be important to you, since it looks like you will need to be on something to give you relief for a while.

I was going to post on this the other day and can't remember where. I don't think I really realized how much it was helping until last week, when I somehow forgot to add it to my 7 day pill dispenser and went without it several days... OUCH!!!

Hope you are making some headway getting some help with this pain.

Cathie
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Old 05-12-2007, 05:45 AM #10
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I know too as my insurance doesn't cover the meds you should inform the doc because there are many alternatives that are so much cheaper. They can also give samples too. How are you doing? Texasgeek I think your so right about the views. I have had a really bad few days in pain and it is so hard mentally to get through. I try to stay in the moment and it will pass and not add extra stress. I was wondering what helps other cope? I have had a lot of treatment in coping mechanisms for depression/anorexia but this seems different. Its just so hard when the pain gets to where you can barely think. I wish there was inpatient treatment for this where they help you with the mental and also continue to find the cause and help with treatments.I guess one day at a time and hoping better times ahead. Hugs to all.
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