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Old 05-04-2007, 08:53 PM #1
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Yeah, take the B-12. Can't hurt you and might help. I just started taking it last week. Gives me lots of energy and I see a teeny bit of improvement. Tomorrow I start taking Fish oil also. I got all the information off of this boards. Mrs. D., Rose and others know QUITE A BIT!!!

I don't believe stress causes symptoms, but stress can make them worse.

I bought my B-12 from iherb and it's the methyl B. Very cheap!!!

Take care, keep us posted.

Melody
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Old 05-04-2007, 09:00 PM #2
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Okay, great! I just bought 1000mcg bottle..I figure that should be enough.
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Old 05-04-2007, 09:32 PM #3
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You had a scare and a lot of stress.Please take care of yourself,I mean
It young one..Come back and post good luck and your always welcome.
You had a now have a Many blessings Sue
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Old 05-05-2007, 01:35 AM #4
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Another thought is prediabetes, did you have a 3-5 hour Glucose Tolerance test ? with your B12 levels, what score did they class as normal ?
Rose always recommends AT LEAST 1,000mcg of Methylcobalamin, you can't have to much of it, some Neuropathy patients overseas are treated with 36,000 mcg a day, of b12 methylcobalamin.
No, there no exact time frame with this disease, for some it only stays in their feet or hands and doesn't move away, but it can move up your legs, stop at your knees and others it can go body wide.
Stress can and does aggravate PN, large amounts of sugary food can aggravate PN patients even to those that are not prediabetic or diabetic, alcohol can also aggravate the nerves.
anyway good luck,
Brian
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Old 05-05-2007, 02:45 AM #5
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Thanks for the kind words, guys.

I will ask to have the 3-5 hour test done...as for my B12 levels I want to say they were at or above 700.

I've been trying to look at the foods I eat and I've also been careful to curb any drinking. Which I mean wasn't an issue anyway because I'm from the states and Under 21...right? right? Oh, college.
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Old 05-05-2007, 03:13 AM #6
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Your B12 looks to be fine, its just some doc's will say 300 is normal which its not, its low , jeez, it took me 3 months of B12 Cynocobalamin supplements to get my b12 score up to around 700, i think i must have been running on empty
I didn't realize how old you were but it still won't hurt to get a Glucose Tolerance done, its normaly more for people over their 40's and are overweight & don't do a lot of exercise, but there is no golden rule that fits all, its best to cover all possibilities.
all the best
Brian
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Old 05-05-2007, 06:48 AM #7
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Default You're getting some good advice here--

--but given your age, and the fairly rapid appearance and progression of your symptoms, two things come to mind: toxic exposure, or autoimmune reaction.

I would be very interested to see your results on the Athena test you reported, but that test is far from complete as reagards antibody tests.

Have you had any of the connective/vasculitic antibody tests for the anti-nuclear antibody and its variants? These antibodies are often found in the autoimmune vascultic/connective tissue disorders, and neuropathy due to vasculitis can flare up fairly quickly:

http://www.neuro.wustl.edu/neuromusc...tml#vasculitis

I'd also suggest you look both at teh Liza Jane spreadsheets at www.lizjane.org and Dr. Latov's clinical research paper (in our useful sites section) on serum tests for neuropathic conditions:

http://www.questdiagnostics.com/hcp/...eralNeurop.htm

This will give you some idea of the number of autoantibodies that may result in neuropathy--this is one reason that searches for a cause are often long and expensive.
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Old 05-05-2007, 07:42 AM #8
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Hon.

I know it's hard with college, parties, socialization. but do me a favor AND STOP ANY DRINKING RIGHT NOW.

Take the B-12, don't eat any sugar, (or anything with preservatives).
Do the Hippocrates Diet. Look it up on the internet. Yesterday I was told to go to a website called Raw for 30 days. It tells you all kinds of foods to avoid diabetes, reversing diabetes. Not that you have diabetes BUT you obviously have something going on with your peripheral nerves.

So you'll get your sugar tested. AND NO MORE DRINKING.
No smoking either (hope you don't smoke).

But there is one vice you can still do. Start canoodling!!!! (Safely)

lol
Melody
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Old 05-05-2007, 07:02 PM #9
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A person who is attempting to recover from a nerve problem, whether B12 deficiency related or not, should aim for at least 1000 on their test result (and that should be with no B12 being taken for at least a few days before the blood sample is drawn).

Better yet, just take the 1000 mcg per day (or more) and never ignore it.

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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 05-06-2007, 02:49 PM #10
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Alcohoh to excess can cause PN problems,usually over a period of time.
The medication to treat Aids causes PN..Gook luck. Sue
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