what_testing_have_you_had_for_celiac-----the_testing_has_a_hi_false_neg_rate.---even_when_all_tests_are_run.___keep_a_food_diary._ __good_luck.

I ran across this rare genetic condition today online.

I am not saying you have this, but your symptoms are
similar to some of the list presented on this site:

http://ulf.org/adrenomyeloneuropathy-amn

Since it only occurs in males, and may appear in adulthood,
I think you should read it and see if it warrants a visit to the
doctor for the blood testing explained on the site.

Like many genetic conditions, it may not include all the symptoms listed, but being male is one criterion that is not changeable.
Men with the peripheral spinal cord involvement only, would have the peripheral symptoms mostly. And because this is not common most doctors are unaware of it. (In my case I have an uncommon problem(angioedema) too, and have lived with it all my life with no diagnosis until now).

I wonder if you have had an MRI of the brain, to rule out MS or to see if you have any lesions there?

When you say "bloating" do you mean GI only? Or do you have swelling elsewhere in the body? Do you take an ACE inhibitor for blood pressure? Lisinopril esp can cause a burning bladder because it is excreted whole in the urine. ACE inhibitors raise bradykinin and that causes tissue swelling which will put pressure on nerves. There is an acquired angioedema (ACE inhibitors) and an hereditary form, you can have that is genetic. People who have the hereditary form, have low levels of the enzyme that removes bradykinin from the body. When bradykinin rises swelling and pain results.

--being a bit on the low side at the three hour point of a glucose tolerance test may point to reactive hypoglycemia, which is a fairly common situation in those who are pre-diabetic/insulin resistant--the body is still able to produce a surge of insulin to drive glucose past this resistance into the tissues and keep blood sugar levels from rising too high, but the surge often results in there being too much insulin a few hours on and blood sugar may drop into the 60's/70's before the surge subsides and glucose levels normalize in hours 4-5.

This is why I have often recommended that people get a 5-hour glucose tolerance test with starting glucose AND insulin levels drawn and then similar levels drawn every half-hour after the drink out to 5 hours. Yes, one feels like a pincushion, and it is boring (bring a book or ipod), but the pattern of glucose and insulin readings together over time is often far more illuminating than the glucose readings alone.

It has also become more evident that neuropathy, particularly small-fiber types, can occur in people with impaired glucose tolerance well before frank diabetes has been diagnosed. I've posted a number of times with lists of references from medical journals detailing this--searching here for "impaired glucose tolerance neuropathy" with my name can lead you to these if you are interested.

That's interesting, I'm going to read up about this a bit more. It could (partially?) explain why I had such a huge improvement when I stopped drinking/eating sugar, and cut down on carbs in general.