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Old 05-07-2007, 01:39 AM #21
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Thanks. Well I have to call my neuro today because the other leg that has been just sore slightly from what I thought pressure due to the damaged leg is really painful and I'm fearing its going to get like the other. Melody there is no way my neuro will say that. Its funny cause he made a mistake and I wanted him to say he did. I was like I know docs make mistake but then I got nothing. I think docs take a course to not say sorry. Anyhow he is suppose to be one of the best. I have just seen him a few but had a few phone calls too.
The think with waiting a week is he didn't order new blood work and just told me to wait a week which I assumed meant to start again. So to recap. B complex pill forget and b12 pill of how many mg is what I want?I think I will wait a week anyhow. Also I'm going to ask that # of my b12.
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Old 05-07-2007, 10:59 AM #22
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At least 1000 mcg, which is 1 mg.If it is methylcobalamin, many many times that has been tested and found safe. So, it's up to you.

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Old 05-07-2007, 11:19 AM #23
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All I know is that ever since I started taking the methyl b-12, my burning has lessened. And I take ALOT!!!! I take about 5 of the 1000 pills a day. I place two under my tongue and I let them melt.

I do this first thing in the morning (starting with the two pills). I read it's better on an empty stomach. Then during the day, I just do the rest.

Gives me a lot of energy and if it eventually takes away the freezing, (I don't get the buzzing), then I'll be a happy camper.

So for me, the b-12 methyl was a GOOD thing!!!

We just came back from GNC. They are having their 20% off sale.

I wanted to buy the Alpha Lipoic Acid but it's out of my price range.
I was walking up and down the aisle and lo and behold I see a package of a Pycnogenol and Co-Q10 for $11 (after the 20% discount).

30 pills, one a day. I figured, Hey, Pycnogenol and Co-Q-10 for 11 bucks.

Can't hurt. Might even help.

The back of the package says: Pycnogenol - 30 mgs. CoQ10 - 100 mgs, and L Carnitine Tartrate - 250 mg. (I believe that has something to do with the metabolism).

Just wanted to share!!

Mel

So I'm a supplement person now!!!!!

Melody
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Old 05-08-2007, 01:17 AM #24
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Default Wonderful news!

I'm at 36 days of the B-vitamins therapy and I'm at the point now where there are actually days I have *no* pain. So maybe you'll have results just as positive! Don't get discouraged if you suddenly hit a spot where the pain seems to be back or a bit worse than the previous prior few days. It's probably nerve regeneration and the 'waking' of the new nerves. That's the best analogy I can give for what it's like. It goes away and is even better afterwards than before. It's like a miracle after living with my feet like this since about 2001.
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Old 05-08-2007, 08:21 AM #25
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Thanks. I want to try the b vitamins but the neuro said to wait a week on the b complex even cause my levels are high. I was suppose to have another emg/ssp today but am too sick and in pain so am going on Thurs.The thing is as I have stopped the b complex I have gotten so much worse but may be a fluke and also when my other leg started in horrid pain. Thanks for not letting me loose hope.I lost it at my moms as last night I thought I was going to the er. I felt like I was dying. I'm in the worst pain after three months and now in both legs and sick from the pain killer as I'm taking 2 instead of 1 or a horrible flu. So frustrated and scared.
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Old 05-08-2007, 11:12 AM #26
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Levels of what, specifically? They cannot be too "high" for B12. And if you need it you are being damaged further until you get enough stored to stop the damage.

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Old 05-08-2007, 01:25 PM #27
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The neuro said my b12 level in my blood work was high. I told him the foot/ankle doc had me start b complex 3 weeks back. The neuro said to stop or take less for a week then see but I'm not planning on having another blood test soon so i don't get it. I'm not sure the number. So will there be harm if I take the b complex?
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Old 05-08-2007, 06:31 PM #28
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"High" B12 is not a concern, at all.

If that is all the neuro said was high, the neuro doesn't know diddly about B12.

If you had hugely overdosed with B6 or B3, there would be valid concern. But to tell you to stop B complex because B12 is high is just plain ignorant.

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Old 05-08-2007, 06:48 PM #29
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Thank you. I'm going to make sure on Thurs I wasn't confused and he didn't say high b6 or something. I will also pick up my blood work numbers. On any regards it still confuses me about the week stop plus I had only been taking the 1 b complex for 3 weeks so could any of the numbers be high from that. I do in addition take a 1 a day womens vitamin. Regardless I think since no bad effect of too much I will stop the b complex and get a b12 pill. Is the amount you listed before a good start amount? Has anyone tried a gluten free diet diet but not intolerant or lessened the gluten in there diet with benefits to pain? Rose thanks again.

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Old 05-08-2007, 09:05 PM #30
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Oh, hon. I'm so sorry. I wish I could take your pain from you. I hope they can figure something out that helps relieve it. It does sound as if the B-12 was helping.
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