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Old 05-08-2007, 01:17 AM #1
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Default Wonderful news!

I'm at 36 days of the B-vitamins therapy and I'm at the point now where there are actually days I have *no* pain. So maybe you'll have results just as positive! Don't get discouraged if you suddenly hit a spot where the pain seems to be back or a bit worse than the previous prior few days. It's probably nerve regeneration and the 'waking' of the new nerves. That's the best analogy I can give for what it's like. It goes away and is even better afterwards than before. It's like a miracle after living with my feet like this since about 2001.
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Old 05-08-2007, 08:21 AM #2
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Thanks. I want to try the b vitamins but the neuro said to wait a week on the b complex even cause my levels are high. I was suppose to have another emg/ssp today but am too sick and in pain so am going on Thurs.The thing is as I have stopped the b complex I have gotten so much worse but may be a fluke and also when my other leg started in horrid pain. Thanks for not letting me loose hope.I lost it at my moms as last night I thought I was going to the er. I felt like I was dying. I'm in the worst pain after three months and now in both legs and sick from the pain killer as I'm taking 2 instead of 1 or a horrible flu. So frustrated and scared.
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Old 05-08-2007, 11:12 AM #3
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Levels of what, specifically? They cannot be too "high" for B12. And if you need it you are being damaged further until you get enough stored to stop the damage.

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Old 05-08-2007, 01:25 PM #4
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The neuro said my b12 level in my blood work was high. I told him the foot/ankle doc had me start b complex 3 weeks back. The neuro said to stop or take less for a week then see but I'm not planning on having another blood test soon so i don't get it. I'm not sure the number. So will there be harm if I take the b complex?
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Old 05-08-2007, 06:31 PM #5
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"High" B12 is not a concern, at all.

If that is all the neuro said was high, the neuro doesn't know diddly about B12.

If you had hugely overdosed with B6 or B3, there would be valid concern. But to tell you to stop B complex because B12 is high is just plain ignorant.

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Old 05-08-2007, 06:48 PM #6
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Thank you. I'm going to make sure on Thurs I wasn't confused and he didn't say high b6 or something. I will also pick up my blood work numbers. On any regards it still confuses me about the week stop plus I had only been taking the 1 b complex for 3 weeks so could any of the numbers be high from that. I do in addition take a 1 a day womens vitamin. Regardless I think since no bad effect of too much I will stop the b complex and get a b12 pill. Is the amount you listed before a good start amount? Has anyone tried a gluten free diet diet but not intolerant or lessened the gluten in there diet with benefits to pain? Rose thanks again.

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Old 05-08-2007, 09:05 PM #7
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Oh, hon. I'm so sorry. I wish I could take your pain from you. I hope they can figure something out that helps relieve it. It does sound as if the B-12 was helping.
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Old 05-08-2007, 09:10 PM #8
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At least 1000 mcg (or 1 mg). 1000 - 2000 mcg is the basic medical textbook dose.

If it's methylcobalamin type, you may take much more if you like, and, sometimes it helps even if there isn't a deficiency in B12. Some people, for one reason or another, need lots of methylcobalamin.

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Old 05-09-2007, 04:23 AM #9
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Lightbulb Lidoderm patches...

If you are going to the doctor I'd ask to try these. They can help nerve pain
considerably. Enough to get you out of bed perhaps.

I have used them for years.
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Old 05-09-2007, 07:42 AM #10
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Thank you. I got the b12 in the 1000mcg and I was mistaken the b complex I think has 15mcg. The multi I take has 6mcg.So assuming I still have high b12 and the doc said to lay off for a week and it may be a fluke but since I stopped the b complex I feel worse and more symptoms what should I take? Should I take just the b complex or just the b12 or both?
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