Well, from what I've read - too much b-complex can be a bad thing because B6 can cause problems if you overdose. But B12 ALONE - I'm not an expert - is usually reported as safe at high levels.
You may be experiencing more pain because you stopped the B-complex, which had B12, which you aren't getting now.
So maybe you could try JUST a B12 supplement (without the "complex")?
I take one B12 "dot" daily (500 mcg) sublingual (under the tongue). Plus I give myself a monthly B12 shot (doctor prescribed).
Also, ask your doctor which B-vitamin he thinks is too high. If it is not B12, you should be able to keep taking it by itself. If your doc says it IS the B12, ask him why he thinks it is dangerous. Maybe he knows something we don't?? I'm interested to hear the doc's rationale.
Liz

Yeah, I'm interested too why the doctor thinks your B-12 level is too high!!!

Try and get your exact B-12 level.

Just got mine today, it's 944 and I'm striving for higher. When I got the blood test last Wednesday, I had been on the methyl B-12 for 3 to 4 days. It was enough to get it in my system, obviously. I had never done a b-12 level before.

Melody

Why? Unfortunately, it's called ignorance.

rose

Hi. I had my ssep which is worse then the emg its like a few minutes of constant shocks 4 times. I also had another emg so will see. I got my b12 level and it was 2000 and that was just from taking the complex b for 3 weeks. So now do I still take the b12? I started back with the b complex cause my syptoms have gotten worse since stopped. I am suppose to go to a pain clinic on Mon but think I may reschedule until I know more cause I fear them making me worse. Just from that emg/ssep I'm in so much pain. Also all the meds have made me sick,the pt made me worse so I don't know what to do about the pain clinic cause what happens if they make me worse since we don't have a dx yet. Any thoughts? I'm looking into other neurology places like that one in Chicago after these results come.

IF it's the PT, you might be overdoing it just a bit..once that 'heavy' feeling starts creeping in...speak up and STOP! As for the pain clinic itself, what are you doing there that's triggering things?
If you read some old posts, you'll find that lots of good, bad reactions can happen, as well as no reaction at all.
The top 'sticky' includes a post listing a large number of medications that could be tried. I truly hope there's one there for you.
I know you've been reading hard and asking lots of very relevant questions. It's a lot to take in while you hurt like the 'Dickens'! Hang in there - j

I'm sure you're right rose - I just thought it would be interesting to hear what he is thinking. Cuz doctors sometimes need "continuing education" in these matters ! Maybe daniella could take a B12 info sheet to him (he'd probably freak out - LOL).

Careful with your B6 levels from a lot of B-complex. Too much and it might cause PN-like symptoms FYI.

"B6 - Doses of up to 50 milligrams of vitamin b6 are generally considered safe; however, taking over 200 milligrams per day of pyridoxine (aka vitamin b6) can cause neurological problems in some individuals." - <<from Vitaminstuff website>>

So extra B12 can be helping while too much B6 is hurting...

BTW, you all should know that I keep saying this cuz I was MEGA-dosing on B-complex before (- rather that B12 only -) and it had an OPPOSITE of good effect!

So now I take the regular B-complex dose, mega-dose the B12 and for me it works great!

Liz

Your 2000 B12 result (on just a B complex) shows that you do not malabsorb severely. You may or may not be headed in that direction.

I would take a reasonable B complex, at least 1000 mcg methylcobalamin B12 at a different time, and you can find an excellent thread about magnesium by mrsd. I believe it is at the vitamin forum.

I wish I had known to take methylcobalamin right away. If I had begun taking 5000 mcg methylcobalamin right away, instead of getting merely adequate treatment after eventually being diagnosed, I would be a lot better off.

rose