I'm sure you're right rose - I just thought it would be interesting to hear what he is thinking. Cuz doctors sometimes need "continuing education" in these matters ! Maybe daniella could take a B12 info sheet to him (he'd probably freak out - LOL).

Careful with your B6 levels from a lot of B-complex. Too much and it might cause PN-like symptoms FYI.

"B6 - Doses of up to 50 milligrams of vitamin b6 are generally considered safe; however, taking over 200 milligrams per day of pyridoxine (aka vitamin b6) can cause neurological problems in some individuals." - <<from Vitaminstuff website>>

So extra B12 can be helping while too much B6 is hurting...

BTW, you all should know that I keep saying this cuz I was MEGA-dosing on B-complex before (- rather that B12 only -) and it had an OPPOSITE of good effect!

So now I take the regular B-complex dose, mega-dose the B12 and for me it works great!

Liz

Your 2000 B12 result (on just a B complex) shows that you do not malabsorb severely. You may or may not be headed in that direction.

I would take a reasonable B complex, at least 1000 mcg methylcobalamin B12 at a different time, and you can find an excellent thread about magnesium by mrsd. I believe it is at the vitamin forum.

I wish I had known to take methylcobalamin right away. If I had begun taking 5000 mcg methylcobalamin right away, instead of getting merely adequate treatment after eventually being diagnosed, I would be a lot better off.

rose

Liz,

I'm always interested in what they say. Frustrated usually, but interested. Sure wish more of them would rely less on the pharmaceutical reps for their continuing education

My smart-*** reply was to someone else's question, I think.

rose

Hi. So if I take a b complex, womens 1 a day viatmin, and then seperate take 1000mcg of b12 that would not be too much b12 with by levels and there would be no harm? It has been a week too since the doc said to wait a week. I also take magnesium and glucosamine msn. Also for my blood work I'm skeptical because as I said though at the end of my weight gain when I was severly anorexia/under and ended up in 2 cardiac units my blood work was fine. Like how can that be? So I often am skeptical but what can one do? Thanks again

I have been looking at everything I can see about methylcobalamin for years. I know of absolutely no reason to fear harm if you took dozens of those 1000 mcg methylcobalamins every day. A possibility of help, yes. Danger, no.

It's amazing how ill, even near death, some can be and have a good lab report. I was literally dying for lack of B12, and my CBC results were smack down the middle.

rose

I have to agree with Rose. My doctor looked at me when I her told what was going on with the B-vitamins and said, "We tested you last summer and your levels are fine." I had to point out that the test results aren't always accurate. She agreed after a few moments of thought. Besides which, the proof isn't in the test results but in the fact that my PN is almost gone already.

Daniella, yeah I think you are on the right track with that vitamin combination. I wish you success!

Also - this is sort of a "theoretical" question to put out there for everyone.

Are the mega amounts of B12 helping us with PN because we are actually deficient....OR.......and this is just a thought I had........maybe huge amounts of B12 counteracts some sort of underlying problem that has yet to be discovered/identified in the medical community. You know......since docs don't really know how to treat neuropathy, they must not be 100% clear on all the causes/mechanisms.

I'm probably way off the deep end - but it was a thought I had!

Liz