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#1 | ||
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Junior Member
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Mrs. D, you have so much info, its seriously appreciated. Thanks.
so I've been up all night so far with my feet/arms/hands burning , but what is worse are the palpitations and heart rhythm. I feel the entire bed shaking from my pounding heart and it either is pounding way too slow, skipping beats, or, by a slight move, racing. What are the best ways to deal with this? I'm new to these autonomic symptoms and they really freak me out. My neck even hurts from the heartbeat. |
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#2 | |||
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Wisest Elder Ever
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I'd report this to a doctor. Take your pulse also and log it.
I had pounding like that when I was having the crisis reaction to my blood pressure pill! This is a serious symptom IMO. It would be a good idea to have a blood pressure cuff at home so you can take it when these "attacks" come on. I had to keep a log of pressures 3 x a day for 3 months, when I had my reaction, that my doctor insisted upon.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#3 | |||
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Wisest Elder Ever
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Quote:
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#4 | ||
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Junior Member
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#5 | ||
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Junior Member
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I do notice my symptoms cycle every few weeks. They get really bad, then wind down then speed up again. Is this typical?
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#6 | ||
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Junior Member
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I am getting worried because the neuropathies seem to be getting worse instead of better.
I was healing (2 weeks of no neuropathy) and then went to the chiopracter may 1 and the neuropathies came back 100x worse than before and also started up atonomic dysfunction. It has not gone away since and a painful part of every day. I can't help but think the chiopracter released toxins from my joints effecting the CNS. Is this possible? Also: Originally this was from a flagyl reaction, but I was under extreme stress at the time. I was fighting an unknown virus (stress on body) and also thought I had contracted HIV and given it to my newborn daughter (extreme emotional stress.) I found in the book "bitter pills" that this may have increased the severity of CNS reaction. Talking about solders sick after being made to take strong antibiotics to fight chemical warfare: A certain percent will have reacted to these drugs, especially while under the stress of a combat situation and the likelihood of head traumas, which is a cofactor in developing a severe CNS reaction to FQs (see "Bitter Pills" by Stephen Fried, pg 38-39). |
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#7 | |||
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Member
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Apologies if I ask for the obvious, and you probably already thought of that, but are they following your menstrual cycle?
I just happened to see a documentary on women who had horrible hormone swings that went way beyond "just being a bit grumpy". Food seemed to play a big part, and they normally found out after an elimination diet. Your condition might get worse in the same way (I'm not saying they are causing it). That said, your symptoms sound worrying to me, and I hope you have someone around who can keep an eye/call a doc when things go bad. I'm not a doctor, but problems with your heartbeat and other symptoms make me think about toxins before they make me think of "just" autonomic PN. Other question: are you hyperventilating? |
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#8 | |||
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Wisest Elder Ever
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Flagyl is not a fluoroquinolone.
It is chemically different, and will not necessarily cause the damage the same way the fluoroquinolones do. http://en.wikipedia.org/wiki/Metronidazole
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#9 | ||
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Junior Member
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I'm aware its not an FQ, but its just that my reactions are so severe (and unique!) and I can't help but think that there are some strong similarities to the way my neuropathies developed as I was under extreme physical and mental stress at time if onset. And both FQs and Metrodonzadole are both so toxic to the CNS. Now I'm getting worried this could be ischemic. I'm sorry to be questioning this so much, but I'm in an extreme amount if pain and bed ridden. I had 1 hour sleep last night and can barely walk. I'm hanging on by a thread. I was a healthy active and fit mother three months ago. Now I can't even attempt a flight of stairs. |
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#10 | ||
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Junior Member
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I'm not menstrating as I had a baby on NYE and was breastfeeding. So it hasn't come back yet.
And no I'm not hyperventilating. This is not the cause of the PN. It hits me all day everyday. It is always on feet (worst part), hands, arms, and constantly moves around rest of body or all of body. This is not a migraine. It's been neurologist confirmed PN and autonomic. |
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