[DejaVu]

I am not sure of where to post this and hope MrsD, or another moderator will help with this.

Since the PN group is my "home base," I will start this here.
I have had myoclonus along with PN; this does not prove they are connected, however. My medical picture is far from clearly presenting one picture or two... or even three. (PN has been one of the most consistent of all.)

I am limited in my ability to recount info. at the moment.
I have been experiencing myoclonus again, for about 10 days or so.
This is not the first time I have had myoclonus, along with sound sensitivities, etc. (I have also had intermitttent severe RLS over the years; yet, have not seen this in a long time now... once I had realized my exposure to my computer was triggering the RLS. RLS came back when I had purchased a laptop and was using it for the first day! )

This myoclonus has been very active. It is whole body and is close to constant.
The magnesium (ionic fizz) had seemed to quiet this quite a bit for a few days. Suddenly, the myoclonus was worse and relentless. THis has been active during the day, not only when falling asleep. Many times, things in a hand, or things with a hand simply resting upon them, cause the object to suddenly fly violently across the room. Also have shoulder shrug(s), muscles jumping wildly, along with lesser muscle movements (fasciculations), head/neck jerks, limb jerks, etc. These movements go down through legs/feet, too.
Also have repetitive muscle movements on the trunk of my body.

The last time I had this, my neurologist had tied it in with use of an SSRI.
We had shown that relationship again by re-exposing me to the same SSRI after the myoclonus had quieted.

Right now, we do not know the exact cause. My neuro. will be scheduling testing. He states I have a few things going on that could contribute to myoclonus/myoclonic seizures (and/or other seizure activity). (I am aware of the various potential causes for myoclonus.)

I am very sensitive to meds of all types. In the past few days, I was given the choice of clonazepam or Keppra, until we know more about the etiology of the myoclonus and also know how I respond to treatment.

I do not do well at tolerating Keppra at all. Just cannot do it.
I tolerate clonazepam much better. Yet, asleep and dazed.
He'd wanted me to work my way up to at least 4 mg. per day, to see if this amount would give me control. (He had said often 4mg-10mg is used for myoclonus, thus he was not overly concerned about the 4 mg. dose. He did some labs, too, for now.) I am to try to use the clonazepam to control the myoclonus over the weekend...and until we can sort out he reasons for the myoclonus this time around. (No new meds on board.)

Wow! I am having great difficulty writing this, please forgive me for any errors.
My max for the clonazepam is btw. 3-4 mg right now....and I then sleep almost all day. I awaken in a daze. It gives me cognitive problems. I try to take at least 1/2 or the total daily dose at bedtime.

My question: Are there other supplements that may be less sedating, yet may help with myoclonus? Has anyone heard of using some of the supplements used in this/other conditions for controlling these movements... for calming the nervous system?

MrsD, I had tried to research myoclonus and in the search function, had found it in many different forums. I am not sure of where to place this post.
I am also a bit dazed form the extra med. Please move this post if it needs to be elsewhere? Many thanks to you!
Love your new flowers!

I hope everyone is having a good day!

Many Thanks!
~DejaVu