Hello everyone! I've been reading through the different forums for several weeks and I thought I would finally introduce myself. I'm a 35 year old female and I was diagnosed with CIDP (chronic inflammatory demyelinating polyneuropathy) about 6 months ago. I've been receiving IVIG therapy once every two weeks since the diagnosis and it seems to be helping a little. I also go to physical therapy twice a week.

My symptoms are weekness in the neck, upper arms and legs. The weakness started in the arms about 4 years ago I think. I just thought I needed to workout. This went on for a couple of years and then I started limping on my right foot. That is when the weakness spread to my legs. I went to many different orthopedic doctors and spine specialists for a while until I was advised to see a neurologist.

About 18 months ago the neurologist first told me I had ALS. At the same time I found out I was pregnant with my first child. I have gone through many different emotions since then. I am glad that I am doing much better than I thought I would and the baby was also born with no complications. It has been difficult not being able to do the same things as I used to especially with a new born baby to take care of. I am still able to get around with no assistance and to take care of my baby on my own.

Unfortunately, I am starting to loose interest in things I used to enjoy and am starting to leave the house less. I thought this was a good time for me to join an online community to meet people with similiar experiences and try to take control of this now.

I am looking forward to getting started.
Amanda