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Old 07-24-2013, 11:18 AM #11
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At first, Dr's. Best was the only game in town. Searching google again, I see other brands pop up, but I couldn't tell you if they're all the same stuff (same mfr.) being packaged & sold as different brands or not.

Stacy, I don't know what else to suggest that I haven't already.

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Old 07-24-2013, 08:08 PM #12
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I was just given a script for Lyrica yesterday.

I have had so much pain since I got hit by the car. I really didn't want to start another med but I actually feel desperate. I take Cymbalta and Tramadol when needed. I also take R-Lipoic Acid, COQ10, B12, Krill Oil.

My pain level is about 8-9 everyday now. I was doing pretty good before. I even started PN.

I saw my neurologist yesterday and he suggested Lyrica. He said when people with PN get injured the can go into a flare up. He also said sometimes it calms back down and sometimes it doesn't.

Has anyone ever experienced anything like this? Did it stop or not? I also have fibromyalgia with the SFN. Now some of my joints have swelled and are painful.

Anything you can share about accidents and/or Lyrica I would appreciate it.
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Old 07-24-2013, 08:15 PM #13
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Hopeful, I am so sorry to hear this!

My heart and prayers go out to you and all of us dealing with pain.
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Old 07-24-2013, 09:27 PM #14
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Default Lyrica

I just started the "generic" Lyrica. I've been on a few different meds and nothing is coming close to touching my pain/symptoms. The Lyrica seems to be making me feel worse. I can barely see straight and my neck is stiff. Is this normal?
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Old 07-25-2013, 10:02 AM #15
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I didn't tolerate Lyrica (or gabapentin) well either, but many rave about it -- everyone is different. IIRC, my doctor wanted me to give it a month (which I did) to see if the side effects abate.

A condition called torticollis ("twisted neck") has been reported as a side effect of Lyrica/pregabalin.

lyrica torticollis

With any/every med., the question is, do the benefits outweigh the side effects (or... does the good outweigh the bad).

Your doctor needs to know about this and any other intolerable side effects, and whether or not the Lyrica/pregabalin is helping. If you decide to discontinue it, your doctor needs to taper you off of it slowly -- please do not discontinue abruptly.
Quote:
Withdrawal symptoms

It is typical to experience withdrawal symptoms when stopping Lyrica. To avoid or minimize withdrawal symptoms, the treating physician should prescribe a program for reducing the medication over time. In general, Lyrica should be discontinued gradually over one week. [or longer]
http://www.spine-health.com/treatmen...ica-pregabalin
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Old 07-27-2013, 06:00 PM #16
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Just joined your group to talk to you about the fact that my doctor said to stop taking Gabapentin for a whole week before starting Lyrica. It took so long to get to see the doctor that the burning pain in my feet by then made me want to yell. I got the Lyrica prescription and started right away taking some that night. Didn't care about a possible overdose : was way beyond caring. Anyway, Lyrica gave me nightmares and fitfull sleep for a couple of nights and I was reducing the number of Gabapentin from 6 to 3 a day. Now, I take 1 capsule of 75 mg of Lyrica (actually the generic med) in the morning, 3 Gabapentin at supper time and 3 Gabapentin before bedtime. Since taking Lyrica, I have noticed memory loss, balance trouble and word slurring occasionally. I do not want to stop taking it because the medication is helping to keep the pain at a manageable level. I know that my doctor would get mad if she learned that her orders are not followed exactly. What do you think?
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Old 07-27-2013, 08:01 PM #17
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I was in 2 car accidents and have had back and neck pain ever since. Each year (accident happened in 2007 and should have killed me) the pain gets worse. I feel your pain I also have fibromyalgia and Raynaud's. I take Lyrica but it doesn't help the pain it just makes me feel drunk. I'm still waiting on an MRI but I constantly need to lay on the floor and twist/crack my back for that 1 minute of relief. Do you try sleeping differently? Like pillows between your knees or extra pillows under your head. I think the way I sleep determines how the start to my morning will be. I hope that you find something that works for the pain. Ps I put voltaren gel on my lower back and it helps a little
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Old 07-28-2013, 01:21 AM #18
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Quote:
Originally Posted by Ouchnic View Post
I know that my doctor would get mad if she learned that her orders are not followed exactly. What do you think?
Hello Ouchnic, Welcome.

I don't know your doctor, but if you know that she would get mad, then I think you're probably correct.

What's done is done; what do you think you should do from this point forward?

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Old 07-28-2013, 10:59 AM #19
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Quote:
Originally Posted by Ouchnic View Post
Just joined your group to talk to you about the fact that my doctor said to stop taking Gabapentin for a whole week before starting Lyrica. It took so long to get to see the doctor that the burning pain in my feet by then made me want to yell. I got the Lyrica prescription and started right away taking some that night. Didn't care about a possible overdose : was way beyond caring. Anyway, Lyrica gave me nightmares and fitfull sleep for a couple of nights and I was reducing the number of Gabapentin from 6 to 3 a day. Now, I take 1 capsule of 75 mg of Lyrica (actually the generic med) in the morning, 3 Gabapentin at supper time and 3 Gabapentin before bedtime. Since taking Lyrica, I have noticed memory loss, balance trouble and word slurring occasionally. I do not want to stop taking it because the medication is helping to keep the pain at a manageable level. I know that my doctor would get mad if she learned that her orders are not followed exactly. What do you think?
Is generic Lyrica available in the US now? Was just taking with my Neuro about it, and he said it would be a more expensive option than Nortriptyline.
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Old 07-28-2013, 04:33 PM #20
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Hi Everyone, I couldn't get on the computer to see your responses over the weekend. Had my grandchildren.

Stacy thank you for the prayers!

Mg23 I know how you feel. I just can't believe this happened to me from a small accident. I mean she did hit me kind of hard but still I would not have expected all this. Seems like everything went haywire.

Ouchnic Next time you see your doctor it may be a good idea to make them aware of what doses you are taking in your meds. I tend to change doses of my meds on my own but when I see my doctor I always tell them. They can't help if they don't know. Welcome to the group!!

I started the Lyrica a few days ago. 50mgs three times per day. So far only mild side effects. I feel little fuzzy in my head and tired. It has not worked on the pain yet but I think I should give it some time. I hate having to take medications but I can't take the pain!
Thanks again everyone!!!
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