NeuroTalk Support Groups - Burning mouth syndrome question

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- - Burning mouth syndrome question (https://www.neurotalk.org/peripheral-neuropathy/191847-burning-mouth-syndrome-question.html)

Thanks so much for all the replies, the only medication I take is Gabapentin, it does cause dry mouth but I've taken it for 2 years without any problems, could it cause BMS? Hmmm!

If it did, I think it would be extremely rare; gabapentin is often mentioned as a treatment for BMS -- even when searching for it as a cause.

gabapentin cause burning mouth syndrome

Doc

Quote:

Originally Posted by Dr. Smith (Post 1002386)

The good news (hopefully?) is that our good ol' R-Lipoic Acid has been shown to help a majority of BMS sufferers.

burning mouth syndrome lipoic

Doc

I had it horrid for a year or so, even one grain of pepper made my toes curl and toothpaste was a big challenge. And then just like that it went away about the same time I started supplements now that I think about tit.

I sure hope the supplements do help, this condition is terrible, it's not bad enough that SFN causes numbness and burning, but that things like BMS is part of it is unbelievable! I sure am grateful for this forum and all of you. Thanks for all the support! Jan

Luke 1:37 For nothing is impossible with God.

Quote:

Originally Posted by Liftyourhands7 (Post 1003226)

I have been reading about SFN for some time. My understanding is that SFN is a cause of facial pain, scalp pain, and mouth (lips and tongue) pain. I would have to go back and look through my stack of articles to find the exact citations. As I recall, SFN is likely to be localized to one side of the mouth or the other and in severe cases can interfere with swallowing. Believe it or not but it can be confirmed by a punch biopsy! Ouch.

Is yours localized to one side or the other? I have fairly severe facial pain on occasion. I am a little worried that one of these days I will start noticing the same thing on my tongue. That really sounds miserable.

Mike

Hi Mike,
I have had the bunch biopsy and it was positive. I have full Body SFN, so the numbness and tingling are everywhere, and yes its pretty miserable, but I am learning to cope with it since there is no known cure. I take 100mg of R-lypoic acid everyday and it seems to be helping the BMS, I keep thinking the progression of things going on with me will maybe stop someday, at least one can always hope! For now I am very grateful for this forum and I am a Christian so my hope is in Jesus Christ to get me through all of this! Have a blessed day. Jan

Luke 1:37 For there is Nothing impossible with God!

Quote:

Originally Posted by Liftyourhands7 (Post 1002305)

Hi everyone, I haven't been on the forum in a while, just had to take a break away, I hope all of you are doing ok. I have a question about burning mouth syndrome. I have Small Fiber Neuropathy, I have had SFN for 2 years, but in the past month I have developed Burning mouth Syndrome, I have read that SFN can cause burning mouth syndrome but I'm hoping someone here has more information on this condition and maybe can offer some advice on what kind of help I should seek. I'll tell you this, SFN can sure reek havoc on your body. As always thank you for your help. Jan

Luke 1:37 For Nothing is impossible with God!:)

I, too, have burning mouth syndrome. It began about two months after the initial onset of other neuropathy symptoms. My mouth is burning now... tongue, gums, palate, lips... even down my throat. I have body-wide neuropathy so it sort of blends in with everything else but probably is the most distressing of my pain. I take Gabapentin (1800 mg daily) and Nortriptyline (10 mg) and it does help but never really takes it away. I have been tempted to try Cymbalta, but hesitate after reading the 20x20 package insert of side effects. You'd think I'd just grab it and take it given the pain, but I've read so many times that it "works" until it "doesn't work" and then you're left dealing with really nasty withdrawal symptoms, and I really don't think I could handle anything else. Yes, SFN does take its toll on both the body and spirit. Lift our Hands and ask for enough grace for the day, right? So sorry you suffer. No one (except someone experiencing it) can really understand how life altering this is. Blessing for your day:hug:

Hi heb1212, thanks for the reply, I am so sorry that you have body wide SFN, it's awful isn't it! I just this past month developed BMS. Just when I thought things could'nt get any worse, they did. I also have heart palpitations and of course a lot of other problems that I'm sure are related to SFN. I only take 300mg of gabapentin at bedtime I just don't like the sedating feeling it gave me during the day, I just couldn't tolerate it so therefore I only take it at night. I'm sorry you have this condition but I'm glad that you can relate to how I feel, it helps to know that someone else can sympathize. Everyday I try to remember to thank the Lord for giving me another day of life, like they say things could always be worse! If you don't mind can you tell me, is your SFN idiopathic or do you know your cause? How long have you had it? What other symptoms do you have? Sorry for all the questions, it's just unusual to meet someone who has body wide SFN! Hope to talk with you again soon, blessings, Jan:hug:

Luke 1:37 For nothing is impossible with God!