Hi everyone, I haven't been on the forum in a while, just had to take a break away, I hope all of you are doing ok. I have a question about burning mouth syndrome. I have Small Fiber Neuropathy, I have had SFN for 2 years, but in the past month I have developed Burning mouth Syndrome, I have read that SFN can cause burning mouth syndrome but I'm hoping someone here has more information on this condition and maybe can offer some advice on what kind of help I should seek. I'll tell you this, SFN can sure reek havoc on your body. As always thank you for your help. Jan

Luke 1:37 For Nothing is impossible with God!

The good news (hopefully?) is that our good ol' R-Lipoic Acid has been shown to help a majority of BMS sufferers.

burning mouth syndrome lipoic

Doc

Thanks Dr. Smith, I hope you are right, I have been reading about BMS and that RLA has been known to help, I take 100mg a day. Thank you for your reply, hope you are doing well. Blessings, Jan

--is not a well-understood entity, though it may be related to the trophic changes of erythromelalgia and even complex regional pain syndrome (CRPS).

Take a look at:

http://neuromuscular.wustl.edu/senso...html#burnmouth

Thank you for the link...I have another question about BMS I am post menopausal and have SFN, could my BMS be from one or the other or both of these conditions? If its from SFN could it get better and do you think R-Lpoic could help? I do have bitter taste in mouth but I can still taste, I'm afraid to ask this question but could I lose taste all together? What about smell? I have also hesitated on going to the Doctor concerning BMS... Not sure there is much they can do... Do you think a trip to the Doctor might prove helpful? Thanks for letting me pick your brain. Blessings, Jan

Luke1:37 For Nothing is impossible with God!

The short answer is YES -- to SFN, and RLA (see below).
This does not mean other causes are not possible.
I don't see how menopause, in and of itself, could cause BMS.

Trigeminal small-fiber sensory neuropathy causes burning mouth syndrome.

The above information is quoted multiple times in the following link:

burning mouth syndrome small fiber neuropathy

I think that this is reason to remain hopeful. Six to seven years can also bring about new information/treatments.

I have not seen anything to suggest complete/permanent loss of taste or smell.

I don't advocate withholding anything from doctors, even if/when there isn't much they can do. They still need to know what's going on; the doctor/patient relationship is based on trust, and trust is based (at least in part) on communication.

Doc

I had it horrid for a year or so, even one grain of pepper made my toes curl and toothpaste was a big challenge. And then just like that it went away about the same time I started supplements now that I think about tit.

I sure hope the supplements do help, this condition is terrible, it's not bad enough that SFN causes numbness and burning, but that things like BMS is part of it is unbelievable! I sure am grateful for this forum and all of you. Thanks for all the support! Jan

Luke 1:37 For nothing is impossible with God.

I have been reading about SFN for some time. My understanding is that SFN is a cause of facial pain, scalp pain, and mouth (lips and tongue) pain. I would have to go back and look through my stack of articles to find the exact citations. As I recall, SFN is likely to be localized to one side of the mouth or the other and in severe cases can interfere with swallowing. Believe it or not but it can be confirmed by a punch biopsy! Ouch.

Is yours localized to one side or the other? I have fairly severe facial pain on occasion. I am a little worried that one of these days I will start noticing the same thing on my tongue. That really sounds miserable.

Mike

Hi Mike,
I have had the bunch biopsy and it was positive. I have full Body SFN, so the numbness and tingling are everywhere, and yes its pretty miserable, but I am learning to cope with it since there is no known cure. I take 100mg of R-lypoic acid everyday and it seems to be helping the BMS, I keep thinking the progression of things going on with me will maybe stop someday, at least one can always hope! For now I am very grateful for this forum and I am a Christian so my hope is in Jesus Christ to get me through all of this! Have a blessed day. Jan

Luke 1:37 For there is Nothing impossible with God!