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-   -   An Algorithm for the Evaluation of PN (Neuropathies) (https://www.neurotalk.org/peripheral-neuropathy/19194-algorithm-evaluation-pn-neuropathies.html)

nide44 05-11-2007 09:22 AM

Lots of time.
Sometimes we don't have that much time left on this earth.
My son, who experienced a spinal cord injury - fractured neck
at C-5 (Behind your "Adam's Apple"), 7 months ago-
is now a quadriplegic. (Chris Reeve was a C-2/C-3)
His therapy is designed to help regenerate nerves and re-connect pathways......so he can use his normal skills again. His meds and supplements are to give those nerves an optimum environment.
He's 33 and may live to see stem-cell, nerve implant surgical help.
I'm 63 and doubt I'll live to see him have that, and get restoration of his functions. I also doubt that I have the time for my nerves to re-grow to any significant degree, no matter what my health and regimen may be.

MelodyL 05-11-2007 09:53 AM

Hi Bob:

Don't count your chickens out just yet. I'm on the methyl b-12 and my feet do NOT burn like they did before I started to take it. Some people might take longer but what the hell. If you find something that helps rebuild, re-grow, re-heal....WHATEVER it does to the nerves, well, I just hope you are on the methyl b-12 and whatever else it takes.

The day they vote out the guy in the white house who is opposed to stem cell research (to it's fullest potential), well that will be the day that everybody with Parkinson, PN, MS, damaged nerves, WHATEVER!!! that will be the day, we will all celebrate.

Until then, we pray and hope our bodies heal. That's what I do every day.

I do believe one thing however. That stress plays a big part in when our PN flares up.

For example. I've been on the methyl B-12 for almost 2 weeks now. I take 5000 a day. I have noticed a significant improvement in the burning and the freezing. So that's a good thing. HOWEVER, last night, my son (who has aspergers disorder, phoned me up and went into his spiel about how he hates humanity, and humanity is against him, and he's going to be a millionaire by the time he's 40, and he knows everything, blah blah, blah). Now I've been hearing this BS for almost 6 years now. It doesn't get any easier believe me but I've gone to a place in my head where I have the ability to tune him out and I don't get stressed.

But he pushed my buttons last night. We ended on a good note BUT, when I hung up I said to my husband "I wish Frank would not call me, because it sets me up in my head and puts me in a place where I don't want to be".

And sure enought, a few moments later, my feet started to burn. I had to put the Freeze it on it and I was fine after that and I went to bed.

But Alan and I had a long talk about our son and how his behavior has definitely impacted our health. I wish I could just have him NOT CALL US ANYMORE but he's our son and of course the guilt would eat me up alive. But obviously I am in a better place mentally, and feet wise, when I do not hear from him, when I don't have to hear on the phone that "life sucks, why should I work, why can't I gamble, after all it makes me feel good".

My goodness, I mean, how plain can it be. I was fine before I spoke to him and then BOOM, the burning.

So I truly believe that stress (as far as it applies to me), definitely impacts my PN. All I want to do is heal my nerves. My son never asks about our health, anything to do with US. It's all about him. It's gets repetitive and tiring to hear the same garbage from a 25 year old man who never worked a day in his life. I wish I could say to myself "Oh, he has aspergers, he's ill, he's not responsible". But from speaking to professionals, and other people with aspergers, it's not so clear cut.

Ever see Boston Legal?? They have guy named HANDS and he has Aspergers. He hops up and down and makes noises with his mouth AND HE'S AN ATTORNEY!!!. I've met many people with Aspergers since I've made it my business to get to know this disorder. My son exhibits none of that bizarre behavior. He has OCD and is quirky. But he knows exactly what he is doing and has said so more often than not.

I am heading toward the day when I will probably have to completely distance myself totally from his behavior. I believe that is the only way I will live (to my full potential). To do otherwise will be a death sentence for me emotionally and physically.

It's very hard, believe me.

Sorry to go on and on.

Hope you feel better.

Melody

Brian 05-12-2007 02:20 AM

stem cell research
 
Who really knows for certain how long it will be before they will be able to do miracles for those that did no have much hope beforehand.
My personal opinion about stem cell research is that they already know a LOT MORE than they are telling us, they have had this knowledge for a while now and no one could convince me that all governments world wide are just sitting on life saving technology, just doesn't make sense for any country not to go ahead with what they are telling us is only research, yeah right. ha! ha!
As Aussie posted not long ago that our Victorian Goverment has given the go ahead for stem cell research, its more like you can publish more of your findings now, that sounds more right to me, anyway.
Brian

MelodyL 05-12-2007 07:45 AM

Brian:

I wholeheartedly agree with you that our government knows WAY TOO MUCH THAN THEY SHARE WITH US!!!

I mean, really, do you think there is no cure for the common cold???

Give me a break!!!

Melody

nide44 05-12-2007 11:49 AM

Whoever has the cure for the common cold, will
win the Nobel Prize!! Just let the stem cell research be
able to help my crippled son, someday - please !

MelodyL 05-12-2007 11:57 AM

Amen Bob; Hopefully the Christopher Reeve foundation will have a big impact in finding answers to problems like your son's.

We absolutely need more stem cell therapy research if we are ever going to find cures for ANYTHING.

Let's hope the politicians in Congress wise up.

If I've said it once, I'll say it again. What we need in the White House, is a President who knows what it is like to have a family member who has been through Cancer, a President who knows what it's like to have a child with an autism spectrum disorder, and a President who has had a family member impacted by a spinal injury. Only then, will he have a lightbulb moment and sign all the bills that need to be signed.

Just my humble opinion. It will never hit home unless THEY GO THROUGH IT!!!

Melody


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