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Old 07-27-2013, 02:27 PM #1
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Default small fiber question

i have had numb fingers for awhile now 24/7, all slightly numb but median nerve distribution more numb, the further out to the tip of my index finger..the most numb. this was triggered by an injury i believe to my brachial plexus and my emg ncv (mri of my neck) came back normal but i was only tested a year after i hurt myself!

would small fiber neuropathy make your fingers and arms feel REALLY heavy and fatigued? this is my no. 1 complaint. i cant double click on a mouse because my arm is so heavy.

my feet are normal

i know all about thoracic outlet, my sx dont totally match up with that either. im confused
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Old 07-27-2013, 07:08 PM #2
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Quote:
Originally Posted by mspennyloafer View Post
i have had numb fingers for awhile now 24/7, all slightly numb but median nerve distribution more numb, the further out to the tip of my index finger..the most numb. this was triggered by an injury i believe to my brachial plexus and my emg ncv (mri of my neck) came back normal but i was only tested a year after i hurt myself!

would small fiber neuropathy make your fingers and arms feel REALLY heavy and fatigued? this is my no. 1 complaint. i cant double click on a mouse because my arm is so heavy.

my feet are normal

i know all about thoracic outlet, my sx dont totally match up with that either. im confused
I do have some of what you describe, in fact I just completed eight weeks of physical therapy to try and improve strength and range of motion, with limited results. Final diagnosis- related to my CMT-( hereditary sensory motor neuropathy with large and small fiber damage). My biggest difficulty is with anything that involves raising arms above shoulder, getting dressed , reaching behind me, etc.
SFN can cause nearly any symptom it seems.
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Old 07-28-2013, 09:42 AM #3
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Default That actually--

--sounds more like "large-fiber" damage.

The median, ulnar, and radial nerves of the arm all qualify as "large fiber" in that they include both sensory and motor neurons and are myelinated. Feelings of heaviness are more likely to be related to the fatigue and difficulty in getting motor signals properly to the muscles.
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Old 07-28-2013, 11:08 AM #4
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Quote:
Originally Posted by Susanne C. View Post
I do have some of what you describe, in fact I just completed eight weeks of physical therapy to try and improve strength and range of motion, with limited results. Final diagnosis- related to my CMT-( hereditary sensory motor neuropathy with large and small fiber damage). My biggest difficulty is with anything that involves raising arms above shoulder, getting dressed , reaching behind me, etc.
SFN can cause nearly any symptom it seems.
Charcot Marie Tooth Syndrome (CMT). Also known as Hereditary Motor Sensory Neuropathy (HMSN).
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Old 07-28-2013, 11:30 AM #5
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As a retired occupational therapist, I'll just chime in to say that O.T. might be of assistance, not in resolving the underlying problem, but in adapting to functional limitations. An O.T would first try to find alternate ways of accomplishing tasks, and if that's not possible, look into adaptive devices to substitute for lost physical functions.

Quote:
Originally Posted by mspennyloafer View Post
i have had numb fingers for awhile now 24/7, all slightly numb but median nerve distribution more numb, the further out to the tip of my index finger..the most numb. this was triggered by an injury i believe to my brachial plexus and my emg ncv (mri of my neck) came back normal but i was only tested a year after i hurt myself!

would small fiber neuropathy make your fingers and arms feel REALLY heavy and fatigued? this is my no. 1 complaint. i cant double click on a mouse because my arm is so heavy.

my feet are normal

i know all about thoracic outlet, my sx dont totally match up with that either. im confused
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Old 07-28-2013, 05:27 PM #6
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Quote:
Originally Posted by glenntaj View Post
--sounds more like "large-fiber" damage.

The median, ulnar, and radial nerves of the arm all qualify as "large fiber" in that they include both sensory and motor neurons and are myelinated. Feelings of heaviness are more likely to be related to the fatigue and difficulty in getting motor signals properly to the muscles.
That is true, it is more likely the large fiber damage.
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Old 07-29-2013, 10:00 AM #7
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Thanks so much. I have voice recognition on my iphone so I thought I'd ramble about my back story. If my hands were just numb I'd get over it but they are very fatigued. I can only barely work part time thanks to copying and pasting, importing etc, voice recognition, and I double-click on the mouse by holding a fat marker in my hand. This has definitely gotten better over time But its still nowhere near normal.

An upper extremity specialist and a neurologist suggested I had carpal tunnel. Until we had the nerve conduction study... But that didn't make sense to me because my pinky and my little finger are numb just a little bit less numb. I have received a steroid injection in my carpal tunnel and it didn't do anything, it didn't hurt or anything. Also my wrists are very hyper mobile and a few times ive bent them in odd positions and sent a jolt into my carpal tunnel. It didn't hurt and only lasted a second. My wrists really don't hurt at all and I think the strength in my hands is "normal". But I do feel abnormal in my pronator area of my elbow, like the pronator teres area into my bicep.


HISTORY----------------
I had a few zingers and zappers prior to my fingers going numb and felt weird "swelling" sensations and my arms in beforehand. Then in March 2010 I was playing Wii and using my laptop and I can't remember.., When exactly but I basically developed shooting pains up And down both my arms right in the middle of the elbow... I couldn't bend my arms after that for a day or two I had to keep them straight And they were very swollen. I had pain bending my arms after that for about six months.

Then in August 2010 one day for no obvious reason I noticed I could double-click on a mouse again. And my fingers werent numb, it was so weird But I didn't have health insurance and I was terrified of them going numb again. My dad told me my arms were too scrawny and i needed to strengthen them. days later i did and then I swelled up and went numb again And have been since. I was doing a lot of overhead exercises and I'm sure I had terrible form Because I am grossly hypermobile.

I have a rare genetic syndrome called Ehlers-Danlos syndrome. My shoulders have never dislocated but they both wing sometimes. And ever since this all started I have to concentrate on "holding my right shoulder up". I was in physical therapy for a year and a half for posture "stuff." I do small pilates exercises everyday but the shoulder exercises she gave me weren't working enough and extremely costly so I have to strengthen front of a mirror to see if my shoulders wing. It's still something I have to think about all the time. My left arm doesnt wing as bad, only sometimes. So my fingers always feel numb and fatigued 24/7 but if my rt shoulder is winging i feel "heavy" even more so.

Six months ago I was stretching my pec minor (which isnt tight anymore) and I over did it. I have a small numb patch on just my rt arm and when I look at a dermatome map it points to my auxiliary nerve, which makes sense. But it's associated with crutches and dislocating your shoulders which I obviously haven't done yet.. But I think it's just a testimony to how loose my shoulder can be and how much I can hurt myself without realizing it.
----------------------------

The neuro I went to was at Emory... I'm not even sure how to find a good neuro or maybe I need a physiatrist. I've been to about 15 different doctors/physical therapists. The only interesting thing that came out of it was I found out I had a severe magnesium deficiency, which I have since fixed.

I have mild Raynauds so even autonomic neuropathy makes more sense than small fiber but I still associate the numbness with two events, particularly the SHOOTING PAINS. And numbness is constant so that makes me think it is large fiber.
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Old 07-30-2013, 04:03 PM #8
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I just want to say that I wake up with numb hands and arms often (lasted 5 minutes or so), as well as that heavy, weak feeling in my arms and somewhat in my legs. It is always worse in the morning..and I find that sleeping too long is terrible for it. It feels as though my muscles don't get enough oxygen or something. They diagnosed me with moderate to severe bill lateral carpel tunnel-but have widespread pain and neuropathy symptoms.I don't know if that helps, but I do understand the numbness, shocks, heaviness, and tingling

Please keep us updated.
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Old 07-31-2013, 12:50 PM #9
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yup thats what it feels like, the oxygen thing

im not in pain or anything when i sleep but im pretty sure i get slightly more numb.

my blood pressure can get low too which doesnt help matters, i have mild raynauds
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