[Liftyourhands7]

Hi everyone, I haven't been on the forum in a while, just had to take a break away, I hope all of you are doing ok. I have a question about burning mouth syndrome. I have Small Fiber Neuropathy, I have had SFN for 2 years, but in the past month I have developed Burning mouth Syndrome, I have read that SFN can cause burning mouth syndrome but I'm hoping someone here has more information on this condition and maybe can offer some advice on what kind of help I should seek. I'll tell you this, SFN can sure reek havoc on your body. As always thank you for your help. Jan

Luke 1:37 For Nothing is impossible with God!

[Dr. Smith]

The good news (hopefully?) is that our good ol' R-Lipoic Acid has been shown to help a majority of BMS sufferers.

burning mouth syndrome lipoic

Doc

[Liftyourhands7]

Thanks Dr. Smith, I hope you are right, I have been reading about BMS and that RLA has been known to help, I take 100mg a day. Thank you for your reply, hope you are doing well. Blessings, Jan

[glenntaj]

--is not a well-understood entity, though it may be related to the trophic changes of erythromelalgia and even complex regional pain syndrome (CRPS).

Take a look at:

http://neuromuscular.wustl.edu/senso...html#burnmouth

[Liftyourhands7]

Thank you for the link...I have another question about BMS I am post menopausal and have SFN, could my BMS be from one or the other or both of these conditions? If its from SFN could it get better and do you think R-Lpoic could help? I do have bitter taste in mouth but I can still taste, I'm afraid to ask this question but could I lose taste all together? What about smell? I have also hesitated on going to the Doctor concerning BMS... Not sure there is much they can do... Do you think a trip to the Doctor might prove helpful? Thanks for letting me pick your brain. Blessings, Jan

Luke1:37 For Nothing is impossible with God!

[Dr. Smith]

Originally Posted by Liftyourhands7

I have another question about BMS I am post menopausal and have SFN, could my BMS be from one or the other or both of these conditions? If its from SFN could it get better and do you think R-Lpoic could help?

The short answer is YES -- to SFN, and RLA (see below).
This does not mean other causes are not possible.
I don't see how menopause, in and of itself, could cause BMS.

Trigeminal small-fiber sensory neuropathy causes burning mouth syndrome.

The above information is quoted multiple times in the following link:

burning mouth syndrome small fiber neuropathy

Drug therapy with alpha lipoic acid, clonazepam, capsaicin, and antidepressants may provide symptom relief. .... Short term follow up data is promising, however, long term prognosis with treatment is lacking.
http://www.wjgnet.com/1007-9327/full/v19/i5/665.htm

Prognosis

BMS is benign (importantly, it is not a symptom of oral cancer), but as a cause of chronic pain which is poorly controlled, it can detriment quality of life, and may become a fixation which cannot be ignored, thus interfering with work and other daily activities.[13] Two thirds of people with BMS have a spontaneous partial recovery six to seven years after the initial onset, but in others the condition is permanent.[5][17] Recovery is often preceded by a change in the character of the symptom from constant to intermittent.[17] No clinical factors predicting recovery have been noted.
https://en.wikipedia.org/wiki/Burnin...rome#Prognosis

I think that this is reason to remain hopeful. Six to seven years can also bring about new information/treatments.

I have not seen anything to suggest complete/permanent loss of taste or smell.

I don't advocate withholding anything from doctors, even if/when there isn't much they can do. They still need to know what's going on; the doctor/patient relationship is based on trust, and trust is based (at least in part) on communication.

When to see a doctor

If you have discomfort, burning or soreness of your tongue, lips, gums or other areas of your mouth, see your doctor or dentist. They may need to work together to help pinpoint a cause and develop an effective treatment plan.
http://www.mayoclinic.com/health/bur...CTION=symptoms

Doc

[mrsD]

Hi there....long time no see!

1) Burning mouth or other mouth irritations can be from
an ingredient in mouth washes, and toothpaste....it is called
Triclosan. New studies show it causes nerve damage.
There is a post about it on Myasthenia Gravis forum...so search there. And several posts on General forum and Introductions forum. Use our search function to find those.
I am sorry but I just cannot do that for you today.

2). B12 is the next culprit...low levels are connected to burning mouth.

3) As Dr. Smith has posted, lipoic acid can be helpful.

I recall finding a really good dental site with other suggestions, and I posted to a newbie about a year ago giving it. So use the search function to find that excellent article.

Sometimes burning mouth can be traced to certain food intolerances. Seafood, spices etc are the most common. But any food you are intolerant of can do it.

If you reflux in the night with GERD...it can burn your mouth too.
Excessive or regular vomiting will do it too.

Take care... I am leaving Sat morning, and won't be back for 5 weeks for my vacation in the wilds of the North!

[en bloc]

There are many causes of BMS. It's relatively common in those with SFN, Sjogren's, dry mouth (from other conditions), nutritional deficiencies, and even quite common from thrush/candida.

It's one of those conditions where you'll just have to try different remedies until you find what works for you...or you identify the cause first.

[zygopetalum]

Are you taking any kind of medication that is anticholinergic? I get BMS from Spiriva inhaler. If I take it for very many days in a row my airways burn too. I'm not sure if it is a contact irritation, it doesn't really feel like it and the med can cause regular SFN for me too.

judi

[en bloc]

Originally Posted by zygopetalum

Are you taking any kind of medication that is anticholinergic? I get BMS from Spiriva inhaler. If I take it for very many days in a row my airways burn too. I'm not sure if it is a contact irritation, it doesn't really feel like it and the med can cause regular SFN for me too.

judi

It is common for inhalers to cause dry mouth & also candida/thrush...which in turn can cause the BMS. Always rinse your mouth after using an inhaler...and then drink something to help rinse your throat as well.