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Old 09-05-2013, 08:34 AM #11
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Originally Posted by ChaucerFan View Post
Marty, seeing how long you've had PN, I assume you've already tried a cortisone injection for the hip bursitis? After reading in "Listen to Your Pain" that the only--but also very successful--remedy for trochanteric bursitis is corticosteroid directly into the bursa, I asked my orthopedist to try that, and so far its taken care of THAT particular issue for four or five months. (Now I wish I could tame the patella pain, from arthritis or who knows what. Before PN I was active enough to overcome that. Now it's keeping me FROM being very active again. Sigh.) BTW, I agree with you and Stacy that standing is much worse than walking. I wish I could get a "handicap placard" that would let me cut into line at the grocery check-out....
Sigh... I've had injections, didn't do a thing. But thanks for the advice/help anyway.
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Old 09-05-2013, 08:42 AM #12
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Marty, I agree!!!!

My PN is soooo much better this week and I have not gotten to exercise due to company visiting, but I am using my chi machine and it really must be working.

Marty, I too, can not stand in line, it's AWFUL. Even exercise is easier than just standing. And WHY does shopping in a mall make things WAY worse than an hour of full on exercise?????? So weird.
The only thing I can connect it to is the amount of standing done in the mall compared to the amount during exercise (or the amount of blood the pools in the feet and legs while at the mall verses the amount of blood the flows at a higher rate during exercise). I really really wonder if it's not somehow tied to our blood vascular system. (Not the cause of PN but relief)
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Old 09-06-2013, 10:28 PM #13
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This is something with PN that does not make sense to me. The pain becomes tolerable when you start walking but once I am done and starting to do simple tasks in the kitchen which requires standing, that I cannot do. BUT, during those days when pain is really bad, both standing and walking are out of the question.
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Old 09-06-2013, 10:31 PM #14
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Marty, I noticed you were diagnosed to be gluten sensitive in 2009 -- were your test results positive?
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Old 09-06-2013, 10:54 PM #15
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I AGREE!

standing in the kitchen to cook KILLS ME.

But I can walk 2 miles on the treadmill easier, less flare.

weird.
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Old 09-07-2013, 01:03 AM #16
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Marty, I noticed you were diagnosed to be gluten sensitive in 2009 -- were your test results positive?
Yes but on the borderline. Other times it has come back negative too.
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Old 09-07-2013, 01:04 AM #17
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I AGREE!

standing in the kitchen to cook KILLS ME.

But I can walk 2 miles on the treadmill easier, less flare.

weird.
I think it's blood pooling and swelling.
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Old 09-07-2013, 05:25 AM #18
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There nerves in the feet have priorities in sending signals.

For example, cold has priority over heat. I would think that proprioception (involved in walking/movement) would have priority over temperature, or else you would fall. (and have injury).

So standing could be very different from walking etc which is constant movement and hence uses different nerves. The pain of sensory nerves is still there but being temporarily masked by the proprioception nerve priorities. People with severe PN eventually lose proprioceptive ability and don't know where their feet are, and at that point, wheelchairs are needed for the most part.
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Old 09-07-2013, 05:32 AM #19
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It makes sense about the blood pooling because when I just stand my toes swell also. Sometimes they will swell and turn red more than burn and hurt.

I dunno, it all stinks.

You know, even before getting PN I HATED walking in the mall. My feet always hurt more while shopping than when exercising.
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Old 09-07-2013, 03:40 PM #20
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People do not end up in wheelchairs just because they do not know where their feet are. Even those who wear AFO's and have no feeling in their feet. Some of those even drive which might be dicey unless they have hand controls. It doesn't have to be severe either before you don't know where your feet are. This condition is caused by many things - diseases or otherwise.

Proprioception: http://en.wikipedia.org/wiki/Proprioception

The ability to sense where your body parts are.

You don't know where parts of your body are especially in the dark. Police officers do sobriety checks like "walk the line". A good site.
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