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#1 | ||
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Member
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Marty, I noticed you were diagnosed to be gluten sensitive in 2009 -- were your test results positive?
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#2 | ||
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Senior Member
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I AGREE!
standing in the kitchen to cook KILLS ME. But I can walk 2 miles on the treadmill easier, less flare. weird. |
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#3 | |||
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Member
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I think it's blood pooling and swelling.
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Marty Idiopathic PN - diagnosed 1999 |
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"Thanks for this!" says: | Stacy2012 (09-07-2013) |
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#4 | |||
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Wisest Elder Ever
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There nerves in the feet have priorities in sending signals.
For example, cold has priority over heat. I would think that proprioception (involved in walking/movement) would have priority over temperature, or else you would fall. (and have injury). So standing could be very different from walking etc which is constant movement and hence uses different nerves. The pain of sensory nerves is still there but being temporarily masked by the proprioception nerve priorities. People with severe PN eventually lose proprioceptive ability and don't know where their feet are, and at that point, wheelchairs are needed for the most part.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: |
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#5 | ||
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Senior Member
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It makes sense about the blood pooling because when I just stand my toes swell also. Sometimes they will swell and turn red more than burn and hurt.
I dunno, it all stinks. ![]() You know, even before getting PN I HATED walking in the mall. My feet always hurt more while shopping than when exercising. |
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#6 | ||
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Grand Magnate
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People do not end up in wheelchairs just because they do not know where their feet are. Even those who wear AFO's and have no feeling in their feet. Some of those even drive which might be dicey unless they have hand controls. It doesn't have to be severe either before you don't know where your feet are. This condition is caused by many things - diseases or otherwise.
Proprioception: http://en.wikipedia.org/wiki/Proprioception The ability to sense where your body parts are. You don't know where parts of your body are especially in the dark. Police officers do sobriety checks like "walk the line". A good site. |
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"Thanks for this!" says: | ginnie (09-10-2013) |
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#7 | |||
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Member
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Everyone is different and those who have not experienced the pain from standing in relation to PN have no Idea what you are talking about thanks goodness for them really. Anyway I have no idea why but my theory is that there is some kind of connection with blood flow. If the blood is not flowing and if it’s causing pressure, (at least it feels like pressure building) my PN is much, much worse. If I stay on an exercise regimen where I get the maximum blood flow over time it PN seems to improve.
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Marty Idiopathic PN - diagnosed 1999 |
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#8 | |||
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Member
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Yes but on the borderline. Other times it has come back negative too.
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Marty Idiopathic PN - diagnosed 1999 |
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