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Old 08-23-2013, 08:32 AM #1
Stillfighting Stillfighting is offline
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Join Date: Dec 2009
Location: Near Syracuse NY
Posts: 133
10 yr Member
Stillfighting Stillfighting is offline
Member
 
Join Date: Dec 2009
Location: Near Syracuse NY
Posts: 133
10 yr Member
Default What my primary doctor told me.

Since I have had all the basic and more testing with no answers I asked my new primary what I should do. He discouraged me from getting the nerve biopsy. He also told me that though my neurologist was a good doctor that my condition is beyond him. He also said that there are still not many answers for neuropathy and that just a few years ago they only recognized it in diabetics so it wasn't taken as seriously as it should. He then recommended that I get a second opinion from a neurologist in a local teaching hospital setting who works with a team where he would discuss my case with that team along with students. My doctor told me that answers might be down the road, even years by doctors who are not even doctors yet. He also said that a second opinion may make it more possible to get the genetic testing that my insurrance is denying. So I'm waiting for an appointment. Just though I would pass that along.
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