[Stacy2012]

Does anyone else have ONLY that one symptom???

I am so confused about my PN. Supposedly my hypothyroid is the cause of my PN. When I first got on meds I had multiple symptoms, all of which went away except for the burning.

Last week after I upped the dose of medication the burning went away...for about 5 days, only to return with a vengence.

It seems odd to me that burning is my ONLY pn symptom.

Is that odd? Is it normal??? Most folks here talk of more than one symptom.

I feel like I take 1 step forward and 2 steps back, but everything revolves around burning. Benfotiamine was a miracle a year ago, controlled the burning, then wore off, same as thyroid meds.

This seems strange to me and has me wondering if I am stupid to believe this is thyroid. It actually has me so confused I don't know what to think or do anymore.

Anyone else have only burning?

[mrsD]

When my PN started I had lots of
pain. Then finally I got the thyroid
medication and the healing started
with tingling and some burning.

Then my PN stabilized into occasional
burning. For me my burning seems to
Be food intolerance driven.

And oddly after having that toenail removed
My swollen ankle has stopped swelling
which is puzzling still. But burning has
always been my main symptom and
sometimes up to the knees when especially
bad.

[Stacy2012]

Thanks MrsD! Hope you are having a great vacation!

I guess it it confusing why the meds work then stop working, the burning was gone for 5 days, it was HEAVEN, so I thought, ok this really is thyroid, but now its back horrid bad.

If it is food, I have no idea what, the burning is always at night, regardless what I eat.

If I have to get on pain meds what is the best pain med for burning??? Does anything really work????

[lined_in_silver]

Originally Posted by Stacy2012

Thanks MrsD! Hope you are having a great vacation!

I guess it it confusing why the meds work then stop working, the burning was gone for 5 days, it was HEAVEN, so I thought, ok this really is thyroid, but now its back horrid bad.

If it is food, I have no idea what, the burning is always at night, regardless what I eat.

If I have to get on pain meds what is the best pain med for burning??? Does anything really work????

This is and always has been my primary symptom-and yes..its hell especially when you get a break from it,and then it returns. There's a sense of dread that comes with that.

Most doctors with put you on something like lyrica or gabapentin, perhaps along with amitryptaline,or cymbalta. If you mean narcotics, I am on oxycodone. It kinda works..better than nothing. But doctors avoid opiates like the plague now, and even say they can CAUSE pain.

[Stacy2012]

Just seeing you list those meds scares the crap out of me.

I have been and continue to be terrified to get on pain meds. I am still fairly young and can't imagine getting on meds now and possibly never getting off them. Side effects scare me.

I keep saying I am getting close to giving in, but my throat swelled just reading this list of meds. so I don't think I am close at all really. I have refused to accept it....but the fact that I am even talking about it says things are changing.

so depressed.

[lined_in_silver]

Sorry, I don't understand?
These are just options for pain management . They're not all narcotics. I haven't had any trouble stopping any of them.
If you want to lessen the pain, then you have to be open to options..no?
People are most afraid of narcotics, and I understand that. Amitryptaline is an old, cheap tricyclic antidepressant with few side effects. It can help with sleep, mood, and pain. I think its great!

[Chyris711]

Originally Posted by Stacy2012

Does anyone else have ONLY that one symptom???

I am so confused about my PN. Supposedly my hypothyroid is the cause of my PN. When I first got on meds I had multiple symptoms, all of which went away except for the burning.

Last week after I upped the dose of medication the burning went away...for about 5 days, only to return with a vengence.

It seems odd to me that burning is my ONLY pn symptom.

Is that odd? Is it normal??? Most folks here talk of more than one symptom.

I feel like I take 1 step forward and 2 steps back, but everything revolves around burning. Benfotiamine was a miracle a year ago, controlled the burning, then wore off, same as thyroid meds.

This seems strange to me and has me wondering if I am stupid to believe this is thyroid. It actually has me so confused I don't know what to think or do anymore.

Anyone else have only burning?

Hi, I am new to this forum but felt I needed to let you know that Peripheral neuropathy, usually no matter the "cause", can manifest itself with just one symptom, especially in the beginning. As for the possible reason that you had some relief for awhile when you took the thyroid medications, it is most likely because the peripheral neuropathy is permanent but is believed to caused by your thyroid disorder.
Thank you,

Chrissy

[Stacy2012]

thanks Chrissy, welcome to the forum!