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09-27-2013, 03:34 PM
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Wisest Elder Ever
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This is a good start.
What type of artist are you? Do you have contact with pigments, solvents? Some of them are toxins to nerves. Also I'd like to ask about that "bad heart"... does this mean you are on statins for cholesterol? These drugs damage nerves in some people. This is good that some initial supplements are helping you. Don't forget about magnesium in some form...either soaking in epsom salts, taking a quality supplement or using a topical lotion like Morton's new Epsom lotion. Yoga is good. It teaches helpful breathing which can lessen nerve symptoms due to poor breathing habits. Just don't strain anything with some of the more difficult moves. There are things that help PN for most people. But a "cure" is not realistic for many. Stopping progression and lessening discomfort is a serious goal, everyone here can perhaps attain. The exception is the progressive hereditary forms of PN called CMT (Charcot Marie Tooth) disease. Do any of your family relatives have PN, and it is progressing?
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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| "Thanks for this!" says: | NAS7 (09-28-2013), Susanne C. (10-08-2013) |
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09-27-2013, 03:43 PM
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Senior Member
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Hi!
Dont forget the supplement Benfotiamine. It is my favorite "drug". It really does relieve the burning for me. Best advice is to spend time reading ALL over this forum, it is full of great info, especially the supplements post that is at the top of this forum. I have been here over a year and still go back and read all over the place here. |
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09-27-2013, 09:56 PM
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Member
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NAS,
Welcome to this forum. I am sorry you found your way to us because of your pain, but as you read the posts here, you will find information that may help your condition. I am glad that get improvement from taking Vit D. that is a good indication that your PN might respond to supplements. PN has been my first major chronic condition, so this is my first online support group. It has been my life line ever since. As I developed other health conditions, this is the forum that i am comfortable and confident "going home to", so to speak. Please continue posting, ask questions and most especially -- read. Mary |
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| "Thanks for this!" says: | NAS7 (09-28-2013) |
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09-28-2013, 08:07 PM
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New Member
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Quote:
I hope I am doing this correctly. You all are so kind and make me feel less reticent about talking about this. Only a few family members know so far as not to upset them further with the "Oh, here's a new diagnosis" talk. I have asthma, eczema and rosacea, also. Non-steroid inhaler used for asthma and doxycycline(50 mg) used daily for rosacea. I take Diflucan 2 or 3 times a month to stave off yeast infections (Ah, the glory of being a women  )I am also in menopause, so this is a real roller-coaster ride, for lack of a better term! It's a lot to deal with, but I am still here on Earth so I figure I might be doing something right!
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09-28-2013, 09:03 PM
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Senior Member
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Have you been tested for Sjogren's? With the dry mouth, dental problems (you are pretty young for 20+ years of dental work), asthma, and yeast infections bad enough for diflucan that often, you should consider testing for Sjogren's (which can cause PN).
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| "Thanks for this!" says: | NAS7 (09-28-2013) |
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09-28-2013, 10:34 PM
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New Member
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My dentist asked me that a long while back. My Dr. at the time was certain I had lupus and kept checking for it. She ignored the Sjogren's suggestion completely. (I had to fire her and get a new Dr. as she just was stuck in her certainty that I had lupus.) Only one of the many blood tests she did indicated it "could be a possiblity." I thought that was a little nutty. Either you have it or you don't. Happy to say my next Dr. was the best, but he passed in 2010 due to complications of diabetes.
How do they test for Sjogren's? I've only encountered it one time. I Thank-You all again, you have given me great information and I am so glad to be able to talk with others who have this...too bad that we aren't just dreadfully healthy and planning a lunch date instead! 
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09-29-2013, 03:50 AM
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Wisest Elder Ever
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With that chronic Doxy use.... there are nutrient depletions with this drug:
A long list to consider: bowel bacteria disrupted Biotin Calcium Magnesium Inositol All the B's Vit K A very helpful thing for you to consider is Kefir. This is just so great...you will find it amazing. Lifeway brand is now becoming more common in stores and is not expensive. It has 12 cultures in it (more than yogurt) and is lactose free. http://www.lifeway.net/ A friend here on NT suggested it to me, and it really will help with that chronic Doxy use. 4-6 oz a day is all you need. It will help with those feminine issues as well. Many drugs used for long term issues affect how nutrients are used in the body, absorbed and excreted. I use the resource Drug Induced Nutrient Depletion Handbook 2nd ed. , which is a collection of Medline papers on this topic. Unfortunately it is out of print...but this link has some shorthand versions of it: http://www.chiro.org/nutrition/ABSTR...orticosteroids
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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| "Thanks for this!" says: | NAS7 (10-08-2013) |
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10-08-2013, 02:21 AM
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New Member
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I am having a problem with my mouth being extremely dry. Is this a normal part of PN, or could the Vitamin B and D-3 supplements cause this? Some of the meds I take cause dryness in my mouth, but never like this. Thank-You for your help!
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10-08-2013, 06:30 AM
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Wisest Elder Ever
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Dry mouth is a sign of an autoimmune problem... called Sjogren's syndrome.
The supplements should not be causing this to worsen. You can develop blocked salivary glands. You can try massaging corners of your jaw, gently for a minute or two to see if that helps. My doctor suggested lemon or some sort of sour candy twice a day. Biotene products are designed for those with dry mouth. So do check them out to see if they might help: http://www.biotene.com/?google=e_&ro...FeIRMwodBloAJQ
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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| "Thanks for this!" says: | NAS7 (10-08-2013) |
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10-08-2013, 07:17 AM
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Senior Member
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Sorry for not seeing your previous questions about Sjogren's.
This autoimmune condition does cause dry mouth & eyes, along with joint pain, fatigue, and many neurological symptoms. Diagnosing Sjogren's can be difficult. I'd be interested in knowing what 'one test' she was talking about as a possibility. Most doctors look for positive ANA, SSA & SSB as indicators of Sjogren's. However, up to 40% of patients with Sjogren's are sero-negative, meaning their blood work markers are negative...yet they still have the condition. There are other tests, like the schirmer's test to measure tear production, spit test, sialogram (measure saliva flow), salivary scintgraphy (salivary function), and lip biopsy (of the salivary glands). The lip biopsy is about the most definitive test. You should see a good rheumatologist for a full autoimmune work up. BTW, there are products for dry mouth. Biotene makes several OTC products. The most common (and effective) Rx is Evoxac. Your dentist, or doctor can prescribe this is your symptoms are profound. |
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| "Thanks for this!" says: | NAS7 (10-08-2013) |
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