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#1 | ||
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New Member
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I was just diagnosed in August and I'm looking to relate to others that have this.
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#2 | ||
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Grand Magnate
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Welcome. Tell us about yourself.
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"Thanks for this!" says: | NAS7 (09-27-2013) |
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#3 | |||
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Member
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Welcome to the group.
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__________________
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"Thanks for this!" says: | NAS7 (09-27-2013) |
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#4 | ||
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New Member
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I am 51 and was diagnosed in August. Still adjusting to the supplements and pain has been reduced substantially by using D-3 and Super-B Complex. I did not want to take Lyrica when my Dr. asked because I feel that I take enough meds already. I have been disabled since 1993. I have CFIDS, Fibro Myalgia, A "bad heart", sciatica and a few other health issues. I actually thought that the neuropathy was Fibro Myalgia until the pain and numbness became overwhelming.
I am a poet and an artist. I am attempting to do some very basic yoga to help my body calm down. This is brand-new territory for me. I had only heard of this once before from a friend who is diabetic and suffers from it terribly. I guess I'd like to know if this is a wise approach to the neuropathy? I hope to meet others who can tell me what may be normal or notso. I realize that everyone is different, but felt that I could benefit from this forum when I am able to use my computer. I hope this isn't too much information and I Thank-You so much for being here! ![]() |
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#5 | |||
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Wisest Elder Ever
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This is a good start.
What type of artist are you? Do you have contact with pigments, solvents? Some of them are toxins to nerves. Also I'd like to ask about that "bad heart"... does this mean you are on statins for cholesterol? These drugs damage nerves in some people. This is good that some initial supplements are helping you. Don't forget about magnesium in some form...either soaking in epsom salts, taking a quality supplement or using a topical lotion like Morton's new Epsom lotion. Yoga is good. It teaches helpful breathing which can lessen nerve symptoms due to poor breathing habits. Just don't strain anything with some of the more difficult moves. There are things that help PN for most people. But a "cure" is not realistic for many. Stopping progression and lessening discomfort is a serious goal, everyone here can perhaps attain. The exception is the progressive hereditary forms of PN called CMT (Charcot Marie Tooth) disease. Do any of your family relatives have PN, and it is progressing?
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | NAS7 (09-28-2013), Susanne C. (10-08-2013) |
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#6 | ||
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Senior Member
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Hi!
Dont forget the supplement Benfotiamine. It is my favorite "drug". It really does relieve the burning for me. Best advice is to spend time reading ALL over this forum, it is full of great info, especially the supplements post that is at the top of this forum. I have been here over a year and still go back and read all over the place here. |
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"Thanks for this!" says: |
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#7 | ||
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New Member
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Quote:
I hope I am doing this correctly. You all are so kind and make me feel less reticent about talking about this. Only a few family members know so far as not to upset them further with the "Oh, here's a new diagnosis" talk. I have asthma, eczema and rosacea, also. Non-steroid inhaler used for asthma and doxycycline(50 mg) used daily for rosacea. I take Diflucan 2 or 3 times a month to stave off yeast infections (Ah, the glory of being a women ![]() ![]() ![]() |
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