[kazzar1958]

Hi everyone,

I've just come back from a week travelling around Italy which in parts was fantastic but I'm afraid marred by my as yet undiagnosed symptoms including a new one.

I started feeling a bit shaky inside on Wednesday morning and noticed my legs felt like jelly going downstairs in the hotel, like my thighs were juddering. My hands felt wobbly too. When I held them out my fingers were trembling, some worse than others. It lasted all day but was much better the next day. It then came back for the rest of the holiday to varying degrees and always worse in the mornings.

The shooting pains and roving aches in my feet were pretty much constant and I did a lot of walking sightseeing.
Interestingly, my throat problems disappeared for the whole week, very strange.

Anyway, the tremors are not welcome and are worrying as I haven't noticed that it is a common PN symptom.
If anyone else has this please share your experience.

Thanks

Karen

[Synnove]

hi Karen
I have peripheral neuropathy small fiber and also long and also autonomic neuropathy.
When I read your post, I thought," just like the way I feel"
I have become a lot worse in the last few weeks.
I have parasthesia in arms and legs, muscle spasm.
It has become so the last couple of weeks that I feel my hands are week, and YES, THEY ARE TREMBRLING. Lately it is hard for me to grasp and hold on to things. Just by holding a magazine, I can see the flicking of the paper from my shaking. On the inside of my body I feel like a buzz like a comstant vibration.
Is that what you feel?
My neurologist told me that was because the small fiber neuropathy.
But I have become so much worse now. I am going to have a Lumbar Punture or spinal tap in next couple of weeks
Did you see your neurologist when you came back from Italy?
You should get an appointment ASAP.
Did you have a diagnosis of neuropathy before you went to Italy?
Does your tremor get worse when you are tired? Mine does

Hope you see a doctor soon
All the best for you

[Susanne C.]

A lot of us have anything fom light muscle fasciculations to more distinct muscle tremors. They are especially strong if I exert myself to the point of exhaustion, carrying a toddler, bringing in groceries, going up steps, etc. even trying to cook or sew when I am already exhausted will bring them on.

I do not believe that they are considered significant, but they seem a common PN symptom, even the severe, shaking and weakness, type.

Glad to hear that you were able to enjoy your vacation, even if it was in a more limited way. You needed a change.

[Electron]

Originally Posted by kazzar1958

...Interestingly, my throat problems disappeared for the whole week, very strange...
Karen

Do you think a change in diet while in Italy could account for the improved throat? Since this is directly in contact with your food, maybe it would be the first to react to some problem food missing. Just a thought.
Ron

[kazzar1958]

Thanks for replying everyone..

I forgot to mention two new symptoms, an increased need to go to the toilet, particularly during the night and a constant dry mouth and gritty eyes, I'm thinking autonomic dysfunction(or Sjorgren's) from what I've read.
Between 5am and 11am this morning I had to go 10 times!

I tried to eat a lot in Italy, but my apetite was quite poor. The food was pretty much what I would eat at home (pasta, fish, fresh veg).
I have lost so much weight. At first it was because I wasn't eating beacause of worry, but I've been eating normally for a few weeks and I'm still losing it.

I'm having a camera down my throat on Wednesday and am seeing a neurologist on Friday (waited 6 weeks for this appointment). I can't wait now. I'm taking a symptoms list as long as my arm!

I am very worried about what is causing all of this and am thinking the worst.
I know there are more than 100 causes of PN and 400 autoimmune diseases that mimic the symptoms of MS but some of the treatable ones have been ruled out by blood tests already (thyroid, diabetes, B12).

I'm fed up.
Thanks for your support..

Karen

[superstar]

Originally Posted by kazzar1958

Thanks for replying everyone..

I forgot to mention two new symptoms, an increased need to go to the toilet, particularly during the night and a constant dry mouth and gritty eyes, I'm thinking autonomic dysfunction(or Sjorgren's) from what I've read.
Between 5am and 11am this morning I had to go 10 times!

I tried to eat a lot in Italy, but my apetite was quite poor. The food was pretty much what I would eat at home (pasta, fish, fresh veg).
I have lost so much weight. At first it was because I wasn't eating beacause of worry, but I've been eating normally for a few weeks and I'm still losing it.

I'm having a camera down my throat on Wednesday and am seeing a neurologist on Friday (waited 6 weeks for this appointment). I can't wait now. I'm taking a symptoms list as long as my arm!

I am very worried about what is causing all of this and am thinking the worst.
I know there are more than 100 causes of PN and 400 autoimmune diseases that mimic the symptoms of MS but some of the treatable ones have been ruled out by blood tests already (thyroid, diabetes, B12).

I'm fed up.
Thanks for your support..

Karen

Hi Karen,

Just wanted to wish you well with your two appointments this week and hopefully you will soon get some answers.

I am feeling better since surgery but still painful after stitches are out and Dr. said I have an infection so am on antibiotics which don't seem to have made a difference. On two paracetomol and 2 codeine which help but was hoping to be off the painkillers by now. It is a pulling/burning pain if I stand or walk for more than 15 minutes. Also not had any follow up from hospital yet and my GP said to phone them on Wednesday this week if I still have not heard anything, it will be 3 weeks by then. I assume no news is good news as far as the biopsy is concerned LOL.

Take care and let us know how you get on.

Heather

[kazzar1958]

Thanks for your message. I'm glad you are on the mend. I'm sure the antibiotics will kick in soon. Are you back to normal other than that? I remember you saying that you were about 50% better just after the surgery.

I am very down as you can imagine. I won't get any definitive answers this week as it's an initial consult with the neuro. I suppose the ENT dept can rule out throat cancer tomorrow which would be welcome. I'm not worried about that as I think it's more likely to be a nerve problem given all my other symptoms. Sadly there's nothing that can be done if it is. The weird thing is, my voice was perfectly fine for a week on holiday. It has started to go again today, (I've been back two days).
The tremor thing is worrying me the most because all my other symptoms come and go (or in the case of the foot pain, move location).

Anyway, I wish you a speedy recovery. I wondered if you would post again. Let us know how you are doing.
You can send me a PM if you want.

All the best,

karen

[kazzar1958]

Got the all clear on the throat, not cancer. Vocal cords look fine. Consultant thinks it's acid reflux during the night when I'm asleep, particularly as the voice cracking is worse in the morning.

Now the neuro on Friday...

K