[Glyde 11209]

"Glyde 11209;1058956]I've decided not to go to the new neurologist. "

Never say never,,,the electric, pin like jolts of pain have come back.
I am using a steroid topical lotion to put out the fire, it seems to work,,I;m also using Nizoral shampoo, both of which point to it being a derotology problem rather than neurological....
Meanwhile the dermatologist has givien me every thing he can thing of and says it is neurological. and the neurologist says that it SEEMS to be trigeminal neuralgia and the 700 mgs of Tegretol should eventually knock it out....
And...the the intense pain comes back.
I have the appointment with a new neurologist in May, I'm going to go over everything from the bicycle accident in July of 2008 and hope that he has some insight, and a plan.......

[mrsD]

Bumping up the list. I removed 2 duplicate posts today.

If you want to move your post to the top, just bump it, like this.
Copying posts confuses most people.

We even have a smiley for this.

[Glyde 11209]

The electric like sharp jolts of pain are back, taking tegretol 800mg like the doctor said, taking slo-mag, taking NAC, the Mortons liquid on my neck........
I really think I have to get diagnosed by a neurologist, the one that I go to now just say's that
"it's from the bicycle accident in 2008 and seems to be located in the brain stem, it might be a variant of trigeminal neuralgia, the tegretol is about the only thing we can do....."
I just can't buy that, even though I may have to. I wrote earlier that I was not going to keep the appointment with the new neurologist but now I tend to think I should.
My thinking at the time was I was complicating the issue with to many doctors.
One more opinion might just help though

[Glyde 11209]

Originally Posted by mrsD

Bumping up the list. I removed 2 duplicate posts today.

If you want to move your post to the top, just bump it, like this.
Copying posts confuses most people.

We even have a smiley for this.

THAT WAS MY MISTAKE, I NOTICED THE DOUble post, and even a third by me - I had no idea how it happened
I didn't want to be bumped either, it was just a mistake, sorry

[mrsD]

That is okay, I just cleaned it up some. That's my job you know.

We are pretty easy going here, but I just wanted you to know how to bump .... if you didn't already. Some people visit here with very few skills or little computer experience. And they sometimes need a little help.

[Glyde 11209]

Originally Posted by mrsD

That is okay, I just cleaned it up some. That's my job you know.

We are pretty easy going here, but I just wanted you to know how to bump .... if you didn't already. Some people visit here with very few skills or little computer experience. And they sometimes need a little help.

After my back surgery on Dec, 2013, I did not have any of the Trigemenal symptoms (if that's what they are) , sharp electric like jolts, like pins being shoved into all parts of my scalp.
The grace period lasted until late May, and now into the first week of June the symptoms are back.
I see my (old) neurologist on June 11th and I know pretty much what he is going to tell me "I think this is a carry over from your bicycle accident in 2008, and is probably located in your brain stem"
This tells me nothing and I'm not sure what to specifically ask him - what comes to mind is "what is this, and what can be done, and/or what do i do?"
As I have mentioned, when these symptoms first appeared (three months after the accident - Sept. 2008) My dermatologist treated this "itching" with steroid hots etc, until it came to all of us that this was a neurological situation.
I mention the dermatologist because he now points to significant hair loss as pointing to these "electrical" shocks.
I'm at a loss here. I don't know what i have. I'm taking 800 mg of Tegretol.
Taking Slo-Mag and anything else that anyone tells me might work, NAC - 3x a day total of 600 mg....
I've read so many posts that people write not knowing what to do - I'm so sympathetic to all of you.

[mrsD]

I thought you might want to read this poster today, Glyde.

http://neurotalk.psychcentral.com/thread205894.html

He has developed scalp pain, as a consequence of coming off Lyrica. His history involves damage to a nerve in his mouth from a tooth extraction years ago.

You might want to PM him or post to him and compare notes.

[Glyde 11209]

Originally Posted by mrsD

I thought you might want to read this poster today, Glyde.

http://neurotalk.psychcentral.com/thread205894.html

He has developed scalp pain, as a consequence of coming off Lyrica. His history involves damage to a nerve in his mouth from a tooth extraction years ago.

You might want to PM him or post to him and compare notes.

I went to a new neurologist who then sent me to a pain management specialist (been through this before) according to the MRI report there is nothing out of the ordinary.......
She did listen to me and came to the conclusion that it is the occipital nerve, between c3 and c5
She gave me a Cervical Medial Branch Block and an appointment to see her in 4 weeks..
Today, the day after, I have electric jolts of pain all over the top of my head,
in the same pattern I have had since the bicycle accident in 2008.
Does this mean that what is causing these jolts of pin point pain is not occipital neuralgia??
Honestly, I was so happy leaving her office yesterday after the procedure because i had no clue that she would really listen, and no idea that she would actually do something during my visit (this procedure)
I felt nothing except the left side of my entire head being numb all last night.
This morning however - back to the pain.
I will call tomorrow and tell her that the medial branch block did absolutely nothing. At that point I will be considered to be a "problem patient" who wants immediate results
I'm considering waiting fore a week to see how this pans out, then calling if i need to.
I have to say that this doctor is the first one who actually listened, seemed to have a handle on a diagnosis, and did something.
The next step if this doesn't work is to do a cervical radiofrequency ablation
and then if all else fails, a surgically inserted occipital nerve stimulator.
Any thoughts on any of this?
I'm optimistic, yet afraid to get any hopes up at this point.

[Glyde 11209]

The cervical nerve block didn't work....it's wednesday and the electric jolts of pain have been back since early Tuesday.
All I can really tell is that the left side of my head was really numb all of Monday night and part of the next morning.
I called the doctor who wants me to come in on the 25th - giving this 2 weeks to see if the steroid kicks in.....

[Glyde 11209]

Originally Posted by Glyde 11209

The cervical nerve block didn't work....it's wednesday and the electric jolts of pain have been back since early Tuesday.
All I can really tell is that the left side of my head was really numb all of Monday night and part of the next morning.
I called the doctor who wants me to come in on the 25th - giving this 2 weeks to see if the steroid kicks in.....

I don't think that anything is going to help....