[Glyde 11209]

"Glyde 11209;1058956]I've decided not to go to the new neurologist. "

Never say never,,,the electric, pin like jolts of pain have come back.
I am using a steroid topical lotion to put out the fire, it seems to work,,I;m also using Nizoral shampoo, both of which point to it being a derotology problem rather than neurological....
Meanwhile the dermatologist has givien me every thing he can thing of and says it is neurological. and the neurologist says that it SEEMS to be trigeminal neuralgia and the 700 mgs of Tegretol should eventually knock it out....
And...the the intense pain comes back.
I have the appointment with a new neurologist in May, I'm going to go over everything from the bicycle accident in July of 2008 and hope that he has some insight, and a plan.......

[mrsD]

Bumping up the list. I removed 2 duplicate posts today.

If you want to move your post to the top, just bump it, like this.
Copying posts confuses most people.

We even have a smiley for this.

[Glyde 11209]

Originally Posted by mrsD

Bumping up the list. I removed 2 duplicate posts today.

If you want to move your post to the top, just bump it, like this.
Copying posts confuses most people.

We even have a smiley for this.

THAT WAS MY MISTAKE, I NOTICED THE DOUble post, and even a third by me - I had no idea how it happened
I didn't want to be bumped either, it was just a mistake, sorry

[mrsD]

That is okay, I just cleaned it up some. That's my job you know.

We are pretty easy going here, but I just wanted you to know how to bump .... if you didn't already. Some people visit here with very few skills or little computer experience. And they sometimes need a little help.

[Glyde 11209]

Originally Posted by mrsD

That is okay, I just cleaned it up some. That's my job you know.

We are pretty easy going here, but I just wanted you to know how to bump .... if you didn't already. Some people visit here with very few skills or little computer experience. And they sometimes need a little help.

After my back surgery on Dec, 2013, I did not have any of the Trigemenal symptoms (if that's what they are) , sharp electric like jolts, like pins being shoved into all parts of my scalp.
The grace period lasted until late May, and now into the first week of June the symptoms are back.
I see my (old) neurologist on June 11th and I know pretty much what he is going to tell me "I think this is a carry over from your bicycle accident in 2008, and is probably located in your brain stem"
This tells me nothing and I'm not sure what to specifically ask him - what comes to mind is "what is this, and what can be done, and/or what do i do?"
As I have mentioned, when these symptoms first appeared (three months after the accident - Sept. 2008) My dermatologist treated this "itching" with steroid hots etc, until it came to all of us that this was a neurological situation.
I mention the dermatologist because he now points to significant hair loss as pointing to these "electrical" shocks.
I'm at a loss here. I don't know what i have. I'm taking 800 mg of Tegretol.
Taking Slo-Mag and anything else that anyone tells me might work, NAC - 3x a day total of 600 mg....
I've read so many posts that people write not knowing what to do - I'm so sympathetic to all of you.

[mrsD]

I thought you might want to read this poster today, Glyde.

http://neurotalk.psychcentral.com/thread205894.html

He has developed scalp pain, as a consequence of coming off Lyrica. His history involves damage to a nerve in his mouth from a tooth extraction years ago.

You might want to PM him or post to him and compare notes.

[Glyde 11209]

Originally Posted by mrsD

I thought you might want to read this poster today, Glyde.

http://neurotalk.psychcentral.com/thread205894.html

He has developed scalp pain, as a consequence of coming off Lyrica. His history involves damage to a nerve in his mouth from a tooth extraction years ago.

You might want to PM him or post to him and compare notes.

I went to a new neurologist who then sent me to a pain management specialist (been through this before) according to the MRI report there is nothing out of the ordinary.......
She did listen to me and came to the conclusion that it is the occipital nerve, between c3 and c5
She gave me a Cervical Medial Branch Block and an appointment to see her in 4 weeks..
Today, the day after, I have electric jolts of pain all over the top of my head,
in the same pattern I have had since the bicycle accident in 2008.
Does this mean that what is causing these jolts of pin point pain is not occipital neuralgia??
Honestly, I was so happy leaving her office yesterday after the procedure because i had no clue that she would really listen, and no idea that she would actually do something during my visit (this procedure)
I felt nothing except the left side of my entire head being numb all last night.
This morning however - back to the pain.
I will call tomorrow and tell her that the medial branch block did absolutely nothing. At that point I will be considered to be a "problem patient" who wants immediate results
I'm considering waiting fore a week to see how this pans out, then calling if i need to.
I have to say that this doctor is the first one who actually listened, seemed to have a handle on a diagnosis, and did something.
The next step if this doesn't work is to do a cervical radiofrequency ablation
and then if all else fails, a surgically inserted occipital nerve stimulator.
Any thoughts on any of this?
I'm optimistic, yet afraid to get any hopes up at this point.

[Glyde 11209]

I went to a new neurologist who then sent me to a pain management specialist (been through this before) according to the MRI report there is nothing out of the ordinary.......
She did listen to me and came to the conclusion that it is the occipital nerve, between c3 and c5
She gave me a Cervical Medial Branch Block and an appointment to see her in 4 weeks..
Today, the day after, I have electric jolts of pain all over the top of my head,
in the same pattern I have had since the bicycle accident in 2008.
Does this mean that what is causing these jolts of pin point pain is not occipital neuralgia??
Honestly, I was so happy leaving her office yesterday after the procedure because i had no clue that she would really listen, and no idea that she would actually do something during my visit (this procedure)
I felt nothing except the left side of my entire head being numb all last night.
This morning however - back to the pain.
I will call tomorrow and tell her that the medial branch block did absolutely nothing. At that point I will be considered to be a "problem patient" who wants immediate results
I'm considering waiting fore a week to see how this pans out, then calling if i need to.
I have to say that this doctor is the first one who actually listened, seemed to have a handle on a diagnosis, and did something.
The next step if this doesn't work is to do a cervical radiofrequency ablation
and then if all else fails, a surgically inserted occipital nerve stimulator.
Any thoughts on any of this?
I'm optimistic, yet afraid to get any hopes up at this point.


I have no idea if this makes any sense at all, but the night of, and the day after this nerve block - the entire left side of my head was numb - and the pains were even more severe on the top of my head, as if this procedure riled the nerves on the top of my head up......

[Glyde 11209]

Originally Posted by Glyde 11209

THAT WAS MY MISTAKE, I NOTICED THE DOUble post, and even a third by me - I had no idea how it happened
I didn't want to be bumped either, it was just a mistake, sorry

I haven't posted in awhile so I don't remember how this works, but I will give a try at an update.....

I went to a pain management doctore in August who throughout October did a series of occipital nerve blocks to no avail....

then I went to a new Neurologist who actually listened and then told me that it wasn't occipital or trigeminal neuralgia, although it was a neuralgia.

Now this surprised me - he didn't think that the shooting needle like pains shooting across my scalp were caused by my bicycle accident - he thinks this neuralgia was caused by a traumatic experience, but not necessarily the accident....

this was somehow reassuring, he wants me to get a tegretrol level test taken and to see him in January.......

Who knows at this point......

[mrsD]

Thanks for the update... I was hoping you were doing well.

But I do see you are still having difficulties. I am so sorry things are still not working well for you.

Thank you for coming back though...every poster's experience adds to the learning potential we have here for others. Many just read and never register, you know.