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Old 11-21-2013, 09:22 AM #19
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
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10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by echoes long ago View Post
it was my understanding that the room had to be cool or else the heat would slow down the speed of the nerve signals.

i have done quite a few emg/ncs's the last 10 years. at least 8 probably more because i have legs, feet, arms and hands involved. although i wouldnt say i would like to do emg/ncs's as a hobby, its not something i dread doing at all. i dont find them all that bad and for me they are informative first as a diagnosis and later to keep track of progression. i do them every 3-4 or so years now.
My first test, done by my neurologist didn't use heat. The second one was at Johns Hopkins, the room there was set up with a heat lamp installed, so it couldn't have been unusual. My body temperature is usually in the 96 degree range, and I am always cold from the CMT, the neurologist kept checking and telling the technician I was still too cold. The tests take a long time because they do my arms and legs at the same time since all are affected, also I have extremely long limbs.
The doctor at Hopkins was very pleased with himself because his results were slightly less dire than the ones from my doctor's office. I got the impression he attributed the difference to the heat and his skill, although my doctor is the head of the EMG/NCS department at a major hospital.
I wish someone else would corroborate the heat thing. My husband was with me, I swear I didn't make it up!
As Kitt said, they don't retest for CMT patients because they expect progression, so I won't be having any more.
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"Thanks for this!" says:
Kitt (11-21-2013)
 


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