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Old 12-06-2013, 02:18 PM #1
CeCe55 CeCe55 is offline
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I asked the neurologist about this the other day. I said am I crazy or are my symptoms worse in cold weather. I have noticed more foot drop, and tripping over the floor more. I sent my husband out tonight to a meeting because my feet were hurting from the cold.
Hi Sham.
Just out of curiosity-What did your neurologist say about worsening of symptoms and the colder weather? Mine are getting much worse these days.
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Old 12-06-2013, 02:41 PM #2
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Thanks Kitt and hopeful for your replies and suggestions. I am just trying to find ways to cope until my appointment with a neurologist on Jan. 15th. I really need to find some answers as to why this condition has returned after being mostly symptom free for some time.
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Old 12-06-2013, 02:53 PM #3
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For most of us, especially with hereditary neuropathy but others as well, it is a forgone conclusion that the pain worsens in the colder weather. Most doctors I have had contact with are aware of this.
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Old 12-06-2013, 06:49 PM #4
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Originally Posted by CeCe55 View Post
Thanks Kitt and hopeful for your replies and suggestions. I am just trying to find ways to cope until my appointment with a neurologist on Jan. 15th. I really need to find some answers as to why this condition has returned after being mostly symptom free for some time.
Keep us posted on what you find out when you see the neurologist. Any family history of the kind of symptoms you are experiencing? Thank you.
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Old 12-07-2013, 06:13 AM #5
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Keep us posted on what you find out when you see the neurologist. Any family history of the kind of symptoms you are experiencing? Thank you.
Yes, I was thinking about this. The throbbing leg pain sounds like what I experience, I can deal with the burning and numbness but the constant severe pain that feels like it comes from the bones is the primary reason I am on strong pain meds. Unmedicated I can barely move, and now my arms are involved as well. Try not to project into the future ( easier said than done!), this tends to get worse and then stabilize for a while. None of us can predict where it will be.
Right now I am up because I couldn't stand the thigh burning and numb arms. I keep making typos.
Definitely keep us posted and think about family history. Some people hide it or blame old age, arthritis,varicose veins, etc. but if you remember any relatives that had foot or leg troubles be sure to tell the neurologist. A lot of idiopathic cases are hereditary neuropathies.
Good luck!
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Old 12-07-2013, 08:50 AM #6
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Thanks for your replies Kitt and Susanne. My mother did have issues with mobility during the later stage of her life due to complications of diabetes. She was not one to complain about her symptoms though. However, this may be worth a mention when I see the neurologist.
I do believe that weather plays a definite role in in severity of symptoms. Yesterday was overcast with lots of rain. I have also realized that stress is also a trigger. I have never been one to handle stress easily and this has been a very stressful year for many reasons.
Very sorry to hear that you had a bad night Susanne. I hope that you are having a better day today.
I do try to live one day at a time, but not being able to accomplish as much as I am used to is very frustrating. Adapting to this new reality will take sometime. Regards, CeCe.
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Old 12-06-2013, 04:08 PM #7
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Originally Posted by CeCe55 View Post
Hi Sham.
Just out of curiosity-What did your neurologist say about worsening of symptoms and the colder weather? Mine are getting much worse these days.
CeCe55,

The neurologist said that cold weather does make PN worse. That the symptoms have a tendency to be worse in cold weather.
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Old 12-06-2013, 05:14 PM #8
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Quote:
Originally Posted by Sham View Post
CeCe55,

The neurologist said that cold weather does make PN worse. That the symptoms have a tendency to be worse in cold weather.
I don't understand it much but I wonder if it has anything to do with the barometer. That's the reason they gave me for my symptoms getting worse when it rains.
Just a maybe
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Old 12-06-2013, 06:48 PM #9
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I don't understand it much but I wonder if it has anything to do with the barometer. That's the reason they gave me for my symptoms getting worse when it rains.
Just a maybe
A change in pressure makes me hurt all over a lot of the time especially when I sleep or try to. I never get up though. I just hang tough.
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Old 12-07-2013, 02:56 PM #10
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A change in pressure makes me hurt all over a lot of the time especially when I sleep or try to. I never get up though. I just hang tough.

This just happened to me last night. I finally went to sleep at 4:30AM. Unlike you I did get up. Sometimes if I turn the TV on it helps to take my mind off the pain
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