I have not hesrd of the first supplement you mentioned but I sm using the Carlsons fish oil

Mrs D:

Did you find that the cherries helped with your neuropathy (Small-Fiber, in my case), or did it just help with old fashioned arthritis inflamation?

Thanks!

David

Hi Stacy!

It has been two months since you started the Zyflamend so how are you doing? Is your small-fiber burning still greatly dimished using it?

Thanks!

David

Yes I believe so, but it is harder to tell now that I am back home and not in Florida.

When I posted this I was in Florida for a month and it was hot and I could for sure tell a difference as usually I can't go outside at all when its above 65 for any length of time.

Now back home it is winter, below 40 everyday right now, so it's more difficult to tell in such a big way.

I am still taking it twice a day and I want to say yes because life has been great but that could be temps helping too. My worse symptom has always been burning with evenings being worse than days but...this is still all fairly new for me, only been over a year so...not a lot to compare to so to speak.

All that to say, yes I believe it is helping but I will know more when it warms up this spring, since temps play a huge part of it when I go out.

Hope this makes sense.

Mostly the cherries help with my arthritis. I don't have much
PN except for my toes now and then. It would be more difficult to determine that effect. But it is early days yet. I am pleased to be more flexible than before, and can move more easily.

I found some blueberries at Costco too and mixed those in.
It doesn't take much daily to get an effect with the cherries.;)

Stacy,
Judging from what you have written; seems like your burning only occurs when weather is warm. Is this correct? I have purchased the Zyflamend; but have not started using it yet. My burning is daily; evenings being the worst. Might be harder to judge if your pain is seasonal.


Gerry

No.

It does not only burn during warm weather.

BUT when my feet get heated it sets off a flare, so temperature plays a huge role.

They can flare at any time of day or night but typically it's worse from 7pm to 12 or whenever. I rarely make it a whole day/night without a flare at all.

However, at home, I can control my surroundings and be pain free mostly but that isn't to say I dont flare it means in my home, it is easy to control it by using biofreeze and a fan. Out in public/going out not so easy. I stress everytime I leave my house for fear of an episode. Example, going to walmart shopping, if I don't get in and out quickly it will flare. Wearing full shoes that cover my feet, almost impossible. I take a portable battery fan everywhere I go, example to a movie theater, I may need to use the fan at my feet during movie. (silent)

So, since using zyflamend, flares are way more controllable when I am out and about and was awesome while in Florida when typically I could never even go outside, I could some.

My PN seems to be different than many people who have it on this forum, I THINK. Burning is my only problem. None of the pain or problems others have. It started with other symptoms, but all that stuff went away EXCEPT the burning. Burning feet rule my life. I have quit my job as I cant wear shoes.

Again, I will know more if the zyflamend is still my hero when it gets warmer and I go out of controlled environment more. Yes, it is better right now, but its cold. Also, I stay home more during the winter, don't go out. As I type this, it is 20 degrees outside. I keep my house at 63 which is kinda cold, I am sitting here with sweats, hoodie, and a fur blanket with my feet sticking out and a fan blowing on them. They are not flaring bad but I can feel the tingle start which signals it, so by putting the fan on NOW it will help stop a full on flare sometimes. It. is. bizarre. I do feel I am different as I have yet to hear anyone else have my issues like I do.

Anyway, that is long, and I felt compelled to try and explain, when in reality there is no explaining. :(

Edit to add: Zyflamend never got rid of burning. It helped control it in a way that made going out easier. Instead of swelling toes, horrid flare, it may have been more subdued and easier to deal with. Example I layed by the pool in 80 degrees WITH my fan blowing on my feet with biofreeze. Without zyflamend..NEVER. WOULD HAVE . HAPPENED. without it, the fan would not have been enough to keep from flaring and I would never have laid by the pool at all.

Thinking more...I will say yes it is still working great. I had to think of instances I am outside of my home to test the theory. At Christmas I went to inlaws and never used my fan. That is a testament that says zyflamend is still working. The house was way warmer than my home, and while I did not have any socks/shoes on, it was still a miracle they didn't flare or need a fan.

In retrospect, I believe the zyflamend helps more providing I can control the temperature and keep them cool, where as before zyflamend they would flare all the time, even if I had a fan.

I guess I wish it stopped it all together but it is still controlling the flares in a way that never before did. The flares are less severe, fewer, and easier to manage.

Stacy--- I was helping another poster on another forum here, and found this condition that has erythromelalgia as a presenting symptom= increased platelets in the body..

http://www.mpnresearchfoundation.org...FYhcMgodCyUAbQ

Next time you go to the doctor, please check this out with a blood test. I think it is worth pursuing.

Hmm, thanks MrsD!

I don't really have any symptoms except the burning but it's worth looking into. Would I have already had a test for blood platlets that I can look for on an older test? Like I know they test so many things I don't even know what some of them are, or is it so specific that I would not have had a test that checks blood platlets?

In any case, thank you, I will check it out.