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Old 12-11-2013, 12:33 AM #1
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Nervous1 Nervous1 is offline
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10 yr Member
Nervous1 Nervous1 is offline
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Join Date: Jul 2012
Posts: 117
10 yr Member
Default Update on my IVIg therapy

Hello All,

Started IVIg therapy for my autoimmune small fiber neuropathy with autonomic symptoms 3 weeks ago and had 5 infusions over 5 days.
I go back next week for round two of 5 X 5. 1 month later, same thing, 5 X 5.
I am hopeful that this loading phase will really knock this stuff out of me for a while, at least that is what the Neuro thinks and I think it is possible as well.
So far I have alot more energy than I had before and hope to get back in the gym if my body will quit fighting me back.
The first couple of days went well, infusions were given at normal titration without issue. Had slight headache on 4th and 5th day, but pre meds made it go away. On Saturday, the day after the last infusion I had a nasty headache that lasted about 20 hours, then poof, went away while using ibuprofen. Will use tylenol next time.

N1
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