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Old 12-05-2013, 07:18 PM #1
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I did say no right now. They have done lots of blood work, the MRI showed nothing, the emg according to the doctor that did it showed "excessive nerve damage that is dissipated throughout my body, which is extremely rare and not good for my age." The 1st neuro said it probably wasn't cmt because I would be worse than what I am now. The newer neurologist said he does see some signs such as arches, and slight hammer toes on one foot but wants to rule out other things first. He said he wants to rule out any other possible underlying conditions. He also said I have had this for a long time. What other tests can they do to rule things out without spinal tap?
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Old 12-05-2013, 07:23 PM #2
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Old 12-05-2013, 07:26 PM #3
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Thanks, will research all of this
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Old 12-06-2013, 12:48 AM #4
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Anyone ever gone to one? I started today. I am hoping to see improvement. Went to a new neurologist, he didn't like the first diagnosis. Wants to do spinal tap, nerve biopsy, and nerve test. Haven't ever had spinal tap or biopsy, but not looking forward to any of the three. He did prescribe GABA? Whatever it is, said it should improve symptoms. Waiting on Friday to start it. He said it can make you really tired at first.

I have been to a Chiropractor who is trained in upper cervical adjustments. Be advised not all full spine chiropractors are trained in c1 c2 sdjustments so be sure your chiro has tge proper training.
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Old 12-06-2013, 05:23 PM #5
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Anyone ever gone to one? I started today. I am hoping to see improvement. Went to a new neurologist, he didn't like the first diagnosis. Wants to do spinal tap, nerve biopsy, and nerve test. Haven't ever had spinal tap or biopsy, but not looking forward to any of the three. He did prescribe GABA? Whatever it is, said it should improve symptoms. Waiting on Friday to start it. He said it can make you really tired at first.
I have been to a chiropractor many times. However, my problems were not caused by my cervical area. At least nothing showed there. The doctors to continue to not be able to figure out why I got SFN
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