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Old 12-05-2013, 07:26 PM #11
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Thanks, will research all of this
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Old 12-06-2013, 12:48 AM #12
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Anyone ever gone to one? I started today. I am hoping to see improvement. Went to a new neurologist, he didn't like the first diagnosis. Wants to do spinal tap, nerve biopsy, and nerve test. Haven't ever had spinal tap or biopsy, but not looking forward to any of the three. He did prescribe GABA? Whatever it is, said it should improve symptoms. Waiting on Friday to start it. He said it can make you really tired at first.

I have been to a Chiropractor who is trained in upper cervical adjustments. Be advised not all full spine chiropractors are trained in c1 c2 sdjustments so be sure your chiro has tge proper training.
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Old 12-06-2013, 12:48 PM #13
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Originally Posted by echoes long ago View Post
there are many tests for PN that should be done before you have a spinal tap but especially a nerve biopsy. a nerve biopsy is a last resort and only if there is an indication of certain conditions such as vasculitis. nerve biopsies lead to permanent damage and numbness in the area that the biopsy is taken from. It can also lead to long term pain. it also at best just confirms that you have pn not the cause.

lumbar puncture i would have less of reserve about doing, actually i have had one done. it wasnt that bad, but that was only after exhaustive testing before that. ruled out a number of possible causes and conditions.
Hi Echoes,

Interesting. I think I would chance a nerve biopsy before a lumbar puncture, but that may be because I've known more people with botched lumbar punctures than botched nerve biopsies. I can see where respective prejudices can be influenced by personal connections/knowledge.

lumbar puncture arachnoiditis

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Old 12-06-2013, 05:21 PM #14
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Just so we're clear, GABA and gabapentin are not the same thing. Gabapentin requires a prescription, but GABA does not; it is sold as a supplement.

GABA

Gabapentin

Personally, I would not have/permit a lumbar puncture/spinal tap without absolute necessity. I would want to know why the doctor wants it, what s/he will learn from it, and whether there aren't any alternatives.

Same with nerve biopsy; it depends on your symptoms and what s/he's looking for. In my case, I asked my neuro(s) if they wanted a nerve biopsy, and they all said it wasn't necessary because of my symptoms; yours may be quite different.

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Hi Dr. Smith
I did have a spinal tap due to my symptoms they were looking to diagnose MS. That is one of the test that they can do that with.
I also had a nerve biopsy. I was lucky they only did the hole punch biopsy. It was not bad at all. However, with both you always do run the risk of infection following the procedure.
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Old 12-06-2013, 05:23 PM #15
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Anyone ever gone to one? I started today. I am hoping to see improvement. Went to a new neurologist, he didn't like the first diagnosis. Wants to do spinal tap, nerve biopsy, and nerve test. Haven't ever had spinal tap or biopsy, but not looking forward to any of the three. He did prescribe GABA? Whatever it is, said it should improve symptoms. Waiting on Friday to start it. He said it can make you really tired at first.
I have been to a chiropractor many times. However, my problems were not caused by my cervical area. At least nothing showed there. The doctors to continue to not be able to figure out why I got SFN
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