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Old 12-07-2013, 06:50 PM #1
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10 yr Member
fembot fembot is offline
Junior Member
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Join Date: Dec 2013
Location: Mahwah, NJ
Posts: 18
10 yr Member
Default New, but not newly frustrated.

I'm sorry if this seems too long -- I don't normally ever post in forums, but I think I'm at a point where I need to. My boyfriend actually came across them while trying to search for supplements for my leg pain, and I've been coming back ever since to read as much as I can. It's a very lonely feeling having to go through this, but I've felt less alone since I've found you all.

My issues started in 2010 -- although at the time, I didn't realize they were of any importance. The first time I had ever felt any pain was when I attempted to quit smoking using an e-cig -- Blu, to be exact. I thought it was a coincidence at the time, but the bottom of my left foot was very painful to walk on. It was almost like a crushing sensation. I got fed up with Blu, and a few weeks later, the pain had subsided. I really thought nothing of it.

I got into a car accident in early 2011 -- slammed my head pretty hard. Nothing major (or so they told me), but I had some short term memory loss for a while. I honestly have no idea if this has played a role with anything that I'm currently going through, but I find it all important now.

October 2011, I went in to anaphylactic shock. I'm embarrassed to say it, but it was from marijuana. I don't use drugs -- I've only ever smoked cigarettes. I've tried marijuana 4-5 times in my entire life, each time being a terrible experience. The last time I tried it, I figured what the hell -- if I vomit again or feel very ill, then I do and that will be the end of it. Turns out, my throat closed and I blacked out, and had a whole slew of issues. I was stuck with an inhaler for a while. And this led in to other issues.

I was a person who used to go to the gym 5-6 times every week, worked out for an hour or more. I was in great shape. I'd eat things like peanut butter or oatmeal, among other things -- and then I began to have issues with that. Many things that I used to eat, I no longer can. In March 2012, that's when ingesting foods with gluten in them really began to take its toll on me, both physically and neurologically -- so I cut gluten out of my diet. It was very difficult, and I had plenty of mishaps due to my ignorance of it at the time. It was anything from abdominal pain, to brain fog, head lulling (I don't know what other term to use to describe it, but that's what it was), not being able to speak, etc.

Some months later, I ended up being out of work for a week with a fever. No other symptoms, just a fever that ranged between 101-102.

A month later, I "glutened" myself and then found it difficult to stand afterwards. I also found it difficult to walk. My legs could barely get me up the stairs (I needed help). This lasted for one week, and I used OTC pain killers when I needed to.

That same scenario happened a couple more times. Random fevers, random leg pains -- fevers would appear out of nowhere, but the leg pain would come after a gluten "reaction." That is, until August. First week of the month, I had a fever. Second week of the month, I had leg pain again. I took Aleve and pushed through it, because I happened to be moving at the time.

Almost 4 weeks ago, my leg pain came back with a vengeance -- again, on its own -- although that is when it temperature outside dropped in to the 30s, and the cold weather has NOT been kind to me). It has not gone away. It's been anything from the "bee sting" feeling, to electrical shock-like pain, to burning (especially in my knees). My calves, at times, feel like they're being ripped out if I stretch or try to reach up for something. My calves also spasm. Then 3 weeks ago, I had a 101.6 fever (on its own, once again -- besides the leg pain, of course), that lasted for 12 hours and then dropped to 97.7 -- I did take acetaminophen to help reduce the fever.

Almost 1 week ago, my arms began to ache. Things began to feel heavier. The pain has since increased. I can no longer grip things as I normally would.

Needless to say, I have been a mess. Physically, emotionally, mentally ... everything.

I've doctor hopped, like I'm sure most of you have. I've seen plenty of doctors, plenty of specialists -- some who have made me feel crazy, some who have done some tests and told me to come back in 6 months to retest (with no advice or guidance on what else I could do), and some who flat-out said that they just cannot help me. I went to a new doctor this past Wednesday, and he is the first one I've seen that didn't look at me like I was insane, and genuinely seemed like he wants to help me. I kept no medical records from the past, so we're starting from scratch with the blood work, then an MRI and whatever else we need to do. He is pretty convinced that it's something autoimmune, and I think I'd have to agree.

All of my allergy tests in the past were negative. I know I was tested for different autoimmune diseases, and nothing ever came back positive from that, either.

It was affecting me at my job (and I sit at a desk all day) a little bit before, but now it really is. Actually, it's so hard to focus and do what I normally do that I was just told yesterday by my boss that he thinks I no longer care, among other horrible things. Stress has actually made my pain worse. I kill myself to go to a job (that I can't drive to, for the time being) to have them tell me how terrible I'm doing and give me a paycut. This is a nightmare.

So after reading all of this (and I do apologize for it being so long -- I'm just so stressed out and in need of somewhere to go, or someone to talk to and understand), does this sound like anything unusual? Do you think it should be something easy to diagnose? I feel like I'm trapped in a glass box and everything is just out of reach. I've never been in pain enough to make me even THINK about suicide, but it's happened. I would never do it, but that's where my head was at.

Any feedback is appreciated. You all seem like a smart and lovely bunch, so I really just wanted to post and feel a little less alone. Thank you for reading.
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