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Old 12-08-2013, 01:43 PM #4
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Location: Mahwah, NJ
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fembot fembot is offline
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Join Date: Dec 2013
Location: Mahwah, NJ
Posts: 18
10 yr Member
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@St George 2013 -- The only medication that I'm taking is the OTC pain killers. My doctor doesn't want to prescribe anything for me until he can figure out what's wrong. I don't know if I have PN, but judging from everything that I've been going through and everything that I've researched and read here, I'm almost positive that I do. As far as anything else goes, I'm still very clueless. It's beyond frustrating, and I never imagined that anything would incapacitate me to a point like this. I've also been taking B12 supplements -- methylcobalamin (on an empty stomach) and alpha lopoic acid. I don't know if it's working or not -- it's only been a few weeks. Some days are better than others, but the bad days normally have me in tears. Thank you so much for responding -- it means a lot. I do intend to stay as active as I can here -- it's been very informative and comforting.

@Wide-O -- I was dumb and never got copies of my blood work results or medical records, and I doctor hopped so much (and my memory is still not what it used to be), that I don't even remember who I've been to. I'm pretty much starting from scratch again, but I intend to keep copies and records of everything. I won't make that mistake again. As for family history, I only know anything about my mother's side. She has PN (what seems to be mild, or she just hides it well), as well as her father (who developed it after taking a very big fall) -- there are thyroid problems, too. I cannot remember right now if it's a hyper or hypo issue, but I know it's there.

None of them have ever had any issues with food, I know that much -- so it was very difficult trying to convince even my mother that I was having problems with that. I suppose she was in denial or wanted to agree with the doctors who said it was food anxiety, in my head, etc, because it was a doctor saying it so of course he must be correct! Anyhow, it took a long time and me getting progressively worse for her to come around and acknowledge what was happening to me was ACTUALLY happening to me.
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