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#1 | |||
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Junior Member
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@St George 2013 -- The only medication that I'm taking is the OTC pain killers. My doctor doesn't want to prescribe anything for me until he can figure out what's wrong. I don't know if I have PN, but judging from everything that I've been going through and everything that I've researched and read here, I'm almost positive that I do. As far as anything else goes, I'm still very clueless. It's beyond frustrating, and I never imagined that anything would incapacitate me to a point like this. I've also been taking B12 supplements -- methylcobalamin (on an empty stomach) and alpha lopoic acid. I don't know if it's working or not -- it's only been a few weeks. Some days are better than others, but the bad days normally have me in tears. Thank you so much for responding -- it means a lot. I do intend to stay as active as I can here -- it's been very informative and comforting.
@Wide-O -- I was dumb and never got copies of my blood work results or medical records, and I doctor hopped so much (and my memory is still not what it used to be), that I don't even remember who I've been to. I'm pretty much starting from scratch again, but I intend to keep copies and records of everything. I won't make that mistake again. As for family history, I only know anything about my mother's side. She has PN (what seems to be mild, or she just hides it well), as well as her father (who developed it after taking a very big fall) -- there are thyroid problems, too. I cannot remember right now if it's a hyper or hypo issue, but I know it's there. None of them have ever had any issues with food, I know that much -- so it was very difficult trying to convince even my mother that I was having problems with that. I suppose she was in denial or wanted to agree with the doctors who said it was food anxiety, in my head, etc, because it was a doctor saying it so of course he must be correct! Anyhow, it took a long time and me getting progressively worse for her to come around and acknowledge what was happening to me was ACTUALLY happening to me. |
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"Thanks for this!" says: | St George 2013 (12-09-2013) |
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#2 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk:
Is your leg pain, in the muscles? the knee? A shooting pain like down the back? (Sciatica). Only in the thigh? It would help if you can describe it carefully. Is it aggravated by walking? I'd try first off some magnesium lotion on that leg. It is inexpensive, and at WalMart and Walgreen's now. (new) http://www.mortonsalt.com/for-your-h...-epsom-lotion/ This can be a quick indication of what is causing your pain. Only $5.98 for 8oz which will last a long time. Use only on intact skin, about a quarter's diameter rubbed in. You don't need alot at a time. Once or twice a day. If you are gluten intolerant there is going to be possibly other nutrients you are not absorbing orally properly. Zinc, iron are also often low. You can get those tested when you go to the doctor. That fever of 101 and over is high... in an adult 101 is considered serious. This suggests an infection, or possibly lupus. Not all patients with lupus get fevers, but some do. http://www.hopkinslupus.org/lupus-in...comorbidities/ Lupus + young female is what they will look for first. I think you need to keep a log/journal of each day and your symptoms, and food intake. See if something pops up as a trigger. Doctors like logs/journals as it helps they decide on what to look for. You really need to get this looked at carefully... lupus can destroy your kidneys...so get to a doctor ASAP.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | fembot (12-08-2013), St George 2013 (12-09-2013) |
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#3 | |||
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Junior Member
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@mrsD -- The leg pain has been from both thighs all the way down to the bottoms of both of my feet. There have been times where it's gotten so bad that I can't even rest my arms on my thighs due to what feels like soreness, or I suppose they're just very sensitive to touch...? My knees are the only areas that have experienced extreme burning sensations, which has been happening since Friday. The spasms seem to only happen in my calves. The "bee sting" feelings have been very random in my legs. The cold weather really brings on the extreme pain. I can no longer walk for very long without hurting, either. I've tried to go grocery shopping (the cold sections are torture), or to any store, and I have to take many breaks just to be able to continue on. There really isn't any localized pain -- it's all very random and throughout both legs. I had one night where I couldn't have blankets covering my ankles/feet because they felt so heavy that I thought my ankles were going to be crushed -- or that's what it felt like, anyway.
I will look in to those lotions. Given what I just wrote above, do you think I should try one before the other, or should I just try both? And can I use them at the same time? I'm supposed to be getting tested for lupus. I don't think that's one of the initial tests my doctor ordered when I was there last week, though. This is going to sound like the silliest question ever, but is lupus determined by a blood test or another test? I've been having random, "Well, maybe you have...!"s thrown at me by random people -- lupus, as well as Lyme, have been two of those theories. |
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"Thanks for this!" says: | St George 2013 (12-09-2013) |
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#4 | |||
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Wisest Elder Ever
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I only linked one lotion.... you should start with rubbing it into your spasming muscles. You don't slather this on like moisturizer....just use little dollops...it smooths out quite a bit.
This reduces muscle cramping, reduces pain by blocking NMDA pain receptors and improves circulation to the area applied. It is really nice and fast acting too. WalMart has it on the shelf, since spring. Some stores don't have it yet, so check their website and put in your Zip code to see if your store has it. If not, ask them to order it for you. Morton Epsom Lotion. There are muscle inflammations that affect the thighs, and upper arms. Those can be tested for with blood work. Most lupus testing starts with blood work also. Do you go camping....? walk in the woods, etc? You should get tested for Lyme also. There are Lyme related bacterial infections as well to check out.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | St George 2013 (12-09-2013) |
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#5 | |||
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Junior Member
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Oh dear -- I meant 9 YEARS of no red meat, not hours!
I'm not an outdoorsy type of person. In fact, I have been camping or walking through the woods or any of that, really. I've had a single tick on me (that I've known about), and I was very young when that happened. I was tested for Lyme a year ago when I was in the ER from one of the fevers, but it came back negative. From what I understand, there are a LOT of false negatives with a lot of these tests. The pain in my arms is in my upper arms, primarily. I do get it in my forearms, as well. Friday, I was so stressed out due to my job, that it resulted in even more pain -- my shoulders were aching and I just couldn't lift things any longer, or even push a door open. That was also the night that my knees were burning and walking became a huge issue. I feel like the stress is doing me in quicker. The whole situation feels ridiculous. As for the lotion, I realized that after the fact. Sorry. But I will absolutely try it, especially for my calves. |
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"Thanks for this!" says: | St George 2013 (12-09-2013) |
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#6 | |||
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Wisest Elder Ever
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That's okay...I figured it out.
![]() People however with gluten issues, may not absorb the nutrients they consume because the intestine may be inflamed. So I'd still take the methylB12... as insurance. Keep the log and write in your symptoms daily.... see if there is a pattern that appears.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | St George 2013 (12-09-2013) |
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#7 | |||
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Junior Member
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I've been taking the methylB12 daily since we've gotten it. I'll keep at it.
I found the lotion at a store that's about a 60 second drive from me. I will be picking that up ASAP. I'll start keeping a log. I don't know why I haven't, really. Trying to utilize my terrible memory is pretty difficult! ![]() I really appreciate all of your feedback. It means a lot to me. Thank you! ![]() |
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"Thanks for this!" says: |
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#8 | |||
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Junior Member
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mrsD, I did forget to mention that I haven't eaten red meat for about 9 hours. I do eat poultry and fish, though. I'm not sure if that has any bearing on anything, but my boyfriend thought I should add that in, as it could be important.
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"Thanks for this!" says: | Aussie99 (12-08-2013), St George 2013 (12-09-2013) |
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