Dearest Neuro friends,

My Immunologist gave me a RX of Medrol (Methylprednisolone), 4 MG.

I have to take one today and one tomorrow before my IVIG. My question is: Is this a big dose?

I have 30 tablets, so clearly I can take them more than just before this IVIG.

Also do any of you take Medrol or Prednisone regularly? How much?

I am so hopeful that it will help me avoid a negative 'flare' from the IVIG.

And I also am hopeful that this medication will help me if I have a flare.

A 'flare' for those of you who don't have autoimmune conditions, is a systemic tsunami of bad stuff happening all at once. All 'flares' feature profound fatigue, depresssion, pain (systemic myalgia) and for me severe itching/burning/tingling skin.

My face burns like a bad sunburn, for example. All I can do is sit, with my eyes closed. It is an effort to even open my eyes, and reading or using the computer is very exhausting.

A flare can go on for days. After my 10th infusion with Hizentra, the flare lasted for 10 days. I can also have a flare without an infusion, just a conjunction of 'the stars' or whatever influences my immune system to switch into overdrive and attack me.

I'm not so worried about long term side effects of Medrol since I'm already 71 and my bones are very strong, for example.

But I'm curious to know how others deal with this drug.

Hugs, Elaine