advertisement
Reply
 
Thread Tools Display Modes
Old 01-05-2014, 09:36 PM #11
Electron's Avatar
Electron Electron is offline
Member
 
Join Date: May 2010
Location: Oklahoma USA
Posts: 263
10 yr Member
Electron Electron is offline
Member
Electron's Avatar
 
Join Date: May 2010
Location: Oklahoma USA
Posts: 263
10 yr Member
Default

I think escalators and elevators are fun.
Electron is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hopeless (01-06-2014), Sham (01-06-2014)

advertisement
Old 01-06-2014, 11:33 AM #12
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 11:54 AM #13
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

Quote:
Originally Posted by Dr. Smith View Post
For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc
I have the same problems judging getting off and on, and I can no longer walk on them, I just stand to the side and let people pass. I cannot use a treadmill either, my podiatrist tried for half an hour to do a gait analysis, but I kept falling, no matter how he adjusted it. I believe this is just an idiosyncrasy of my CMT.
Susanne C. is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 02:18 PM #14
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Default

Quote:
Originally Posted by Sham View Post
I forgot to say they him hereditary but not sure from where.
You might find the following article of interest. There are many.

http://en.wikipedia.org/wiki/Heredit...mic_neuropathy
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 02:50 PM #15
ElaineD's Avatar
ElaineD ElaineD is offline
Member
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
Default

Moving walkways present problems as well. I do ok if I hang on tight. But there is a sort of wobbling motion. My balance is so terrible that anything sets me off.

If I'm on a elevator I have to hang on when it starts and stops, because sometimes those aren't smooth movements.

After 4 years I'm getting used to taking my PN into account. I'm doing better because I know I need to anticipate, hang on, take time.

I never get out of the car without standing up slowly and then waiting to see if I'm dizzy, if my legs feel ok, and where I'm going to be going next.

The days of just walking around thoughtlessly, just going from place to place quickly are gone. And mostly my grief over that loss is gone too.

I so remember staring up at three flights of stone stairs on Christmas eve as I sat in the car and someone asked, "can you manage those stairs".

"NO, I can't manage those stairs." It was clear, unembarrassed and final.

I am learning!

Hugs, Elaine
ElaineD is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 03:04 PM #16
Sham Sham is offline
Junior Member
 
Join Date: May 2013
Posts: 57
10 yr Member
Sham Sham is offline
Junior Member
 
Join Date: May 2013
Posts: 57
10 yr Member
Default

I have not been on one for many years, so I don' t really know. I can walk on treadmills but have to hang on. Then when it stops, I have to step off and stand there holding on for a minute or to to reorient myself.

Thanks Kitt, I have extremely high arches, slight hammer toes, extremely week ankles, and can not attempt to try to run. I walk looking down constantly so I know where my feet are. I also get cramps in calves and feet and burning pains in legs. Lately with this stupid cold weather my toes are getting painful cramps. My big toe the other night wouldn't go flat and was stuck. I told my husband I am going to retire on a beach somewhere, too bad I am only 36 so it is still a good 30 years away. Now that I am wishing time would go any faster because I do not want to miss anything with my boys. Sorry that was off the subject.

QUOTE=Dr. Smith;1041749]For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc[/QUOTE]
Sham is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (01-06-2014)
Old 01-06-2014, 04:22 PM #17
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
10 yr Member
Default

Some time ago I attended a luncheon where the speaker was probably in her sixties. She began by standing still for a few moments before approaching the podium, and then told her audience, "At my age I find I must stabilize before I can mobilize." We all could identify with her!
Joano is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 04:34 PM #18
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Default

Quote:
Originally Posted by Sham View Post

Thanks Kitt, I have extremely high arches, slight hammer toes, extremely week ankles, and can not attempt to try to run. I walk looking down constantly so I know where my feet are. I also get cramps in calves and feet and burning pains in legs. Lately with this stupid cold weather my toes are getting painful cramps. My big toe the other night wouldn't go flat and was stuck. I told my husband I am going to retire on a beach somewhere, too bad I am only 36 so it is still a good 30 years away. Now that I am wishing time would go any faster because I do not want to miss anything with my boys. Sorry that was off the subject.
Anyone in your family with problems similar to you? You do not have to have high arches, hammertoes, etc. It appears from that article that HSAN 1 includes a type of CMT 2. (Type 2B).
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."

Last edited by Kitt; 01-06-2014 at 04:53 PM.
Kitt is offline   Reply With QuoteReply With Quote
Old 04-23-2014, 12:22 AM #19
Pinksweetpea Pinksweetpea is offline
Junior Member
 
Join Date: Apr 2014
Location: Australia
Posts: 9
10 yr Member
Pinksweetpea Pinksweetpea is offline
Junior Member
 
Join Date: Apr 2014
Location: Australia
Posts: 9
10 yr Member
Shocked Escalators

Quote:
Originally Posted by ElaineD View Post
Even elevators are disconcerting. I always hold on to something when they start up, because a few will jolt a bit, either starting or stopping.

For me it is the STANDING UP, and moving through space that causes the problem. And uncertain movement.

Standing is already a serious difficulty for me....add moving and jolting, and stepping on or off while moving.....not good.

Hugs, Elaine

Oh,as a kid I LOVED escalators. I was a daredevil and very active. Climbing to the top of the tree, hanging by one knee from the top of the jungle gym. Yeah, back in the day.

Walking on the highest wall....climbing rock cliffs, jumping from the highest step.

Everything kids do.
Me too, I am exactly the same when I go on escalators, especially the ones that form steps. If they go too fast, I don't go on them at all in case I fall. If I am honest I am terrified on them because of my balance issues now.
Pinksweetpea is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:00 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.