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-   -   Wondering if I'll be like this forever, (https://www.neurotalk.org/peripheral-neuropathy/199312-wondering-ill-forever.html)

mrsD 01-05-2014 09:34 AM

I gave the links above.... I think this one is the best.

Susanne C. 01-05-2014 09:45 AM

That does sound nifty. I find I am also sleeping too much these days, not sure if it is the fatigue, season, depression, or medication, but I miss waking up at dawn with energy. Those days are probably gone as it takes so long to do everything, it is a half hour or more before I am done in the bathroom and ready to come downstairs.
Mrs. D., does the light visor help with daytime sleepiness?

mrsD 01-05-2014 10:00 AM

Yes, it depends on the person...the timing of the lights.

The light wavelength is a blue green...and very effective at resetting you. I am taking less naps this week. Hubby got fed up with me sleeping so much! LOL

I have a old post on Depression here when I first bought the visor:
http://neurotalk.psychcentral.com/sh...ighlight=visor
This link gives another link for further comments.

I didn't seem to need it last year. I originally was still working when I first purchased the visor. (my neck and shoulders were giving me much trouble then).

You can walk around with this visor, but you have to be careful as it changes what you can see, esp. the feet. So I only use it when sitting down, and mostly on computer.

The price has come down quite a bit since I bought mine, and also one for my son who was interested also.

It is easy, and after the first day---shock at the color/brightness-- there is nothing to it. I leave mine plugged into the charger all the time, so I am pleased that the battery is still good. It has an auto shut off feature and two intensities of light. I only use it on the less intense one. Most of the time for 1/2 hr. But sometimes I increase to 45 minutes.

Stacy2012 01-05-2014 10:22 AM

This sounds like something I would benefit from.

I have always been more emotional, depressed, etc. in the winter. Hubby says I have that disease, winter blues. It always happens in winter.

Will check this out. thanks

hopeful 01-05-2014 01:54 PM

Thanks to everyone for all of your replies. They all have made me think.

Hopeless, I'm happy to hear that you may begin to think of the glass half full more often. I know how hard it is to due that.

Susanne, I know how hard it is to become the person needing the care. That is one of the hardest things for me to accept. During my career I was a nurse.

Ginnie, I have been on the site for a while so I do take many of the supplements recommended here. You may not see much from me because I go on and off the site. I don't understand why I do this. I'm trying to me better about that because I feel better when I talk with people who actually know what I feel like.

Stacy, I'm the same as you I go through pity parties. I try very hard not to let them last long. I pray many times in a day thanking God for everything I do have. Doing this helps to remind me that I have a lot. Actually, the only things I don't have are health and much money without my job. My family and friends are awesome.

Elaine, I do take Cymbalta, Tramadol and Synthyroid. I also do not know what my PN is caused by. Idiopathic! I have some possible ideas but probably will never know.

Mrs. D. thanks for the idea of the visor. It sounds great but I will have to save for it. Christmas was a killer on the finances.

I actually don't believe I am depressed. I'm very good at knowing when I am. It comes off and on. However, I do think that the winter changes my mood. I too am so much happier in the summer. We have had so many dreary days lately.

I give thanks for all of you!!

ginnie 01-05-2014 02:00 PM

Hi hopeful
 
:Tip-Hat:Thank you for your career as a nurse. I have learned something. It is nurses who save people lives. They are the ones who discover a problem first. You should have been paid what football stars are paid. My Night nurse caught an error. I even wrote a thank you note when I was discharge. You did a lot to help suffering. ginnie

hopeful 01-08-2014 05:34 PM

Quote:

Originally Posted by ginnie (Post 1041545)
:Tip-Hat:Thank you for your career as a nurse. I have learned something. It is nurses who save people lives. They are the ones who discover a problem first. You should have been paid what football stars are paid. My Night nurse caught an error. I even wrote a thank you note when I was discharge. You did a lot to help suffering. ginnie

Hi Ginnie,
Thank you for saying that. It was so nice of you to write a note for your nurse. I'm sure it made her feel really great.:)

ginnie 01-08-2014 06:52 PM

Hi Hopeful
 
I really meant it, thank you. My night nurse caught a big error regarding narcotics for after my fusion. I didn't get enough to help for the first 24 hours. He caught it that second night when he came on duty. He was God sent as I was suffering quite a bit, trembling, the whole works. I will never forget that kindness. He questioned why I was in so much pain.....actually looked at my records. I hope that kindness is always extended to you too Hopeful. Ginnie
Nurse Nancy is on NT too and a few others, I extend my thanks to them too.....:grouphug:

Aussie99 01-08-2014 08:38 PM

Quote:

Originally Posted by hopeful (Post 1041338)
I was thinking this morning. I wonder if there will ever be a time that I wake up in no pain. Or at least less pain.

I am only 55. I know some people on here are much younger and I feel terrible for those of you who are. It's unfair that you should have to be subjected to this at such a young age. At least I was lucky to not develop PN until the age of 48. I had my children at a young age so they were all grown. My last was in college.

My life has changed so drastically. As has all of ours on this site. But I wonder if I'll ever be normal again. I still live on the hope that I will wake up one day and I will no longer have pain, my energy will be back and I'll be able to go on with life. Most people tell me I live in denial and need to get past that and accept my disease. I think why. Why can't I hope for the best and deal with the worst as it comes.

I think I still have many years to be here. I think and pray everyday for some thought on what I can do with the rest of my life. I want to do something meaningful and helpful to others. Not sure what that can be.

When I get these thoughts I think, "You can't do much or you will lose your disability." I know I can't allow myself to sit around and do nothing. At times I feel completely useless.

Does anyone else have these feelings? Please know that as I write this I am not depressed just pondering!:grouphug:


Hopeful,

I empathize with you and all I can say is that my illness abated after about 4 years to the point that I was able to live relatively normally with little pain. So anything is possible I feel. I was never one for anything "new age", but the more I mediate and the more I practice positive thinking the more "hopeful" I am feeling and that is a very good thing.

When I worry about the future I have to remind myself that nobody knows what the future brings. I have a client who is in his early 80's and still quite spry. when I met him he told me in his community he is the equivalent of the "black widow". I asked him why? He said his wife died of breast cancer. He then married his 2nd wife (a much younger woman) who then also died of breast cancer. He married a 3rd time though he was cautioned by people not to remarry and his 3rd wife dies of cancer too! I mean what are the odds?

So when I get to worrying about the future I think of this proverb:

If you worry about things and they never eventuate you will have wasted energy,emotion, and time.
If you worry about things and they do eventuate you will have actually lived that experience twice. Once by worrying about it all the time, and then a 2nd time when it truly happens.

I am sure you will get better Hopeful, it just takes time. My 9 years on the board I have seen many many people say they have recovered and have moved on. Sometimes they pop back on just to say hello and and share some good news. I am sure you too will be one of those people.

Aussie:)

hopeful 01-08-2014 09:28 PM

Thanks Aussie! I am keeping hope alive. I don't worry every day. It's just sometimes when I get to thinking to far into the future. I do meditate and most days stick to positive thinking. Just slip at times. Sometimes for a few days in a row. Then I go back to positive thinking.
I'm so happy for you that your pain abated to the point it has. That's great news to hear.
I also like the proverb.


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