Vowel Lady.
Here are some interesting information I came across on the Web the other day. This is in regards to what you mentioned in your post regarding pelvic spasm.:
I came across a web page seems to be posted by a OBYGN group of doctors. They did a study on some women age 24 - 64 who had volvudyna.
They did Autonomic testing for small fiber neuropathy . They did the QSRAT test, found that 10 out of 17 of the women had results consistent with small fiber neuropathy.
I tried, but I am not able to enter a link on this. But the name of this doctor company is: SOHO OB-GYN. there ia a contact e mail for drharris@sohoobgyn.com.
This is interesting, because ( this is a little personal) 2 years ago. my first symptom of peripheral neuropathy was related to symptoms re. urinary, gyn.
But I did not know at the time. I did report it to urologist and neurologist. Later the symptoms of SFN increased and traveled down my legs. ( opposite diresctions, most doctors says !)
But, it is known that peripheral neuropathy first symptoms are in distal portions. Well, as I learned, the sensory nerve of the vulva the Prudendal Nerve ends here, and small fiber neuropathy can occur therfor.
Vowel Lady, I realy hope you will be able to find this site, or perhaps Mrs D can. or perhaps Dr. Smith can.
Enter: Autonomic Testing for Small Fiber Neuropathy in Volvudyna Patients.

I hope the site can be found and printed in this forum.

Hi,
This is really interesting to me. I was diagnosed with volvudynia and vestibulitis two years before I started having symptoms of SFN. It was so painful when I had it and I had no idea what it was. I thought I had interstitial cystitis. There are a doctor and nurse who specialize in volvudynia in Philadelphia. They finally diagnosed it. I never thought there may be a related.

Thanks. I'm going to try to find the site.

hopeful and Vowel Lady,
here is the link to the vulvodyna and small fiber neuropathy study
called Autonomic Testing for Small Fiber Neuropathy in Volvudyna Patients

www.sohoobgyn.com/pdf/poster.pdf

Thanks Synnove, I just finished reading it. Very interesting. I did have the sweat test done and the tilt test several years ago. That was when they told me I had RSD (first diagnoses). I think I'm going to see if I have the results stored away. I'm really curious if this may have been the beginning of my SFN. I guess at this point I'll never know if it was. Thanks again