advertisement
Reply
 
Thread Tools Display Modes
Old 01-07-2014, 07:16 PM #1
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default Question on Radiation mediated Neuropathy

I know there is someone here in the group who developed numbness and tingling due to radiation, I'd like to know what supplements are good for this kind of neuropathy.

Thanks.
Idiopathic PN is offline   Reply With QuoteReply With Quote

advertisement
Old 01-08-2014, 06:13 AM #2
Aussie99's Avatar
Aussie99 Aussie99 is offline
Member
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
Member
Aussie99's Avatar
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Default Hi

I think (IMO) that the same vitamins/ supplements which are used for general/ overall nerve health would be of benefit to you. vitamins that are good for nerve regeneration/ health are Omega 3/6 such as Fishoil,flaxseed oil, primrose oil. Also a multi B vitamin, B12, Vitamin D. I also take Magnesium and R-Lipoic Acid. On top there are stickies which list good vitamins $ supplements for nerves. You could do a search on the forum entering in the keyword 'radiation'. You might find a thread which may be of use to you and also locate other posters who have written their stories regarding radiation induced neuropathy, but may be absent from forum at this time.
Aussie99 is offline   Reply With QuoteReply With Quote
Old 01-08-2014, 06:44 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Here is one article on this topic:

http://www.huffingtonpost.com/leo-ga..._b_837420.html

Radiation damages DNA... so using the DNA (mitochondrial) support nutrients may help damage after the fact.
CoQ-10
acetyl carnitine
R-lipoic acid
Omega-3 fatty acids and perhaps coconut oil
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sallysblooms (01-08-2014)
Old 01-08-2014, 09:28 PM #4
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default

Quote:
Originally Posted by Aussie99 View Post
I think (IMO) that the same vitamins/ supplements which are used for general/ overall nerve health would be of benefit to you. vitamins that are good for nerve regeneration/ health are Omega 3/6 such as Fishoil,flaxseed oil, primrose oil. Also a multi B vitamin, B12, Vitamin D. I also take Magnesium and R-Lipoic Acid. On top there are stickies which list good vitamins $ supplements for nerves. You could do a search on the forum entering in the keyword 'radiation'. You might find a thread which may be of use to you and also locate other posters who have written their stories regarding radiation induced neuropathy, but may be absent from forum at this time.
Thank you for your reply. I did not have radiation. My question was for my friend who finished her radioactive treatment and now experienced 2x total numbness in her right arms/hands. I thought of asking here what might help here what might complement her treatment. She takes holistic treatment as complement to her traditional treatment, except chemo.
Idiopathic PN is offline   Reply With QuoteReply With Quote
Old 01-08-2014, 09:36 PM #5
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Here is one article on this topic:

http://www.huffingtonpost.com/leo-ga..._b_837420.html

Radiation damages DNA... so using the DNA (mitochondrial) support nutrients may help damage after the fact.
CoQ-10
acetyl carnitine
R-lipoic acid
Omega-3 fatty acids and perhaps coconut oil
MrsD,
Thank you for your reply. I will tell my friend about your reply.

If you remember, i Mentioned her condition here a while back. After several months of undergoing holistic treatment, her cancer improved. But for financial reasons (as holistic treatment is not covered by insurance), she stopped her treatment after she improved. After 7 months, her cancer went back. She had radiation treatment in her right breast...after the completion of the the sessions, she has experienced 2x a complete numbness of her whole right arm (from shoulder down to the fingers).

Again, thank you for your help.

Mary
Idiopathic PN is offline   Reply With QuoteReply With Quote
Old 01-09-2014, 08:53 AM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I know of breast cancer patients who prevented spread and did well with treatments by using flax oil mixed in cottage cheese..(which provides sulfur).

The combination of alpha linolenic acid (and essential omega -3 ) plus sulfur seems to work for some reason.

I met ~Pansy~ on our old venue many years ago... here are some of her posts:
http://neurotalk.psychcentral.com/thread41361.html

If you Google "flaxseed oil breast cancer" you'll find other sites like this one:
http://www.cancer.org/treatment/trea...erals/flaxseed

Use of the oil ( a high quality one like Barleans is best I think).
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 01-09-2014, 10:06 AM #7
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,436
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,436
15 yr Member
Default

Quote:
Originally Posted by mrsD View Post
I know of breast cancer patients who prevented spread and did well with treatments by using flax oil mixed in cottage cheese..(which provides sulfur).

The combination of alpha linolenic acid (and essential omega -3 ) plus sulfur seems to work for some reason.

I met ~Pansy~ on our old venue many years ago... here are some of her posts:
http://neurotalk.psychcentral.com/thread41361.html

If you Google "flaxseed oil breast cancer" you'll find other sites like this one:
http://www.cancer.org/treatment/trea...erals/flaxseed

Use of the oil ( a high quality one like Barleans is best I think).
Does it depend on the type of breast cancer or did it just work for the gal you refer to? Just curious. The article mentions studies in mice and rats and small studies in humans. One should read the whole article.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 01-09-2014, 10:25 AM #8
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I never got into the details with the patients I saw in my job...

Pansy's posts reflect the spread after initial treatments and this metastasis was reversed by her use of flax oil and cottage cheese.

Most people in this country are quite low in alpha linolenic acid.
The ADHD studies, which measured the blood of kids showed a ratio of 1:20+ omega 3 to 6... When the desired ratio is 1:5.

When I searched this over a decade ago and found this health problem, was so common, we started fixing Omega-3s in our home. That is the basic reason and success that I am online still today. (my son who had severe ADHD was able to give up his Ritalin and clonodine as a result of the dietary shift).

By doing the flax oil + sulfurated protein all one is doing is fixing their Omega-3 to 6 ratio. It also helps to lower Omega-6 consumption somewhat as that is very high in processed foods.
Omega-6's (linoleic acid)are inflammatory in high amounts in the diet.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (01-09-2014)
Old 01-10-2014, 06:28 PM #9
Balanchine Balanchine is offline
Junior Member
 
Join Date: Sep 2013
Location: California
Posts: 82
10 yr Member
Balanchine Balanchine is offline
Junior Member
 
Join Date: Sep 2013
Location: California
Posts: 82
10 yr Member
Default

Quote:
Originally Posted by Idiopathic PN View Post
I know there is someone here in the group who developed numbness and tingling due to radiation, I'd like to know what supplements are good for this kind of neuropathy.

Thanks.
I could very well be another person with this problem, insofar as I had radiation in '09 for oropharyngeal cancer and, about 2 years later, developed what has been diagnosed as polyneuropathy in both hands and arms and some in my feet.

By coincidence to your post I was with my oncologist today for my yearly checkup and we of course discussed the PN. She had never seen a case of rads (as against chemo, which we know is not uncommon) causing PN but didn't rule it out. She said she would discuss it with her group and get back to me.

If I learn anything that could help anyone here I'll surely post it.
Balanchine is offline   Reply With QuoteReply With Quote
Old 01-10-2014, 06:48 PM #10
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,436
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,436
15 yr Member
Default

In checking different sites they say that radiation can cause PN. Don't know that it's common but according to the sites it can.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
neuropathy question mspennyloafer Peripheral Neuropathy 3 02-21-2013 12:43 PM
Neurally Mediated Syncopy Myra Jenkins New Member Introductions 3 11-30-2007 01:45 PM
I have a question about my neuropathy!!! MelodyL Peripheral Neuropathy 64 05-04-2007 06:54 AM
acetyl-L-carnitine and alpha-lipoic acid against HNE-mediated oxidative stress and ne olsen Parkinson's Disease 1 02-04-2007 12:10 PM


All times are GMT -5. The time now is 03:59 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.