Mel,

In terms of the IVIG and B-12, I sure know what I would do . . . I probably sound like a broken record . . . but I have been advocating here for years about the need to do one intervention at a time if you want to know what works for you. And even then, there are no guarantees. That is, just because you take this vitamin or that supplement or that there treatment, it does not mean that whatever you took or did was responsible for the improvement.

But at least it might be. If you take two things at the same time, you will almost never be able to figure it out. Of course, for some, it may not matter, or maybe you don't care what caused the improvement. If so, then it is fine for Allan to start the B-12. It sounds to me that he is interested. And certainly the paresthesia he experienced is no reason to panic and reach for something else that could help him.

Clearly, Allan should be taking B-12, the only question is when. Take in all the feedback, discuss with him, and I am sure a good decision will be made, whatever choice is made. One that is consistent with his needs.

rafi

I agree. Life is a gamble, and since there is no reason to believe that Alan is extremely low in B12 and in desperate need of at right now, I would continue with the current treatment. Then, later on, I would supplement B12 as a preventative and on the chance it might also help.

The new symptom could be a coincidence, but it could also be nerves responding to treatment and working to repair/regenerate. The timing makes repair a good possibility,but time will tell.

rose

Okay, this is what I gather we should do.

Don't give Alan the Methyl B-12 for now. Wait and see how the IVIG thing goes. By the way, Alan had no bug crawling feeling today. And when he did have it those times, it was always in the same place (from the ankle to mid calf).

So Rose, when do you think we should start Alan on the 5000 Methyl B-12 (the package arrived today). I LOVE iherb.com. They are cheap, and very fast in their delivery. Absolutely blew me away. I am very satisified with this company.

So again, how long do we wait before we go, "okay, let's start Alan on the B-12". Believe me, I know not to ask any doctors this question, because when you mention supplments to them I either get "why on earth do you want to take B-12, do you have a dificiency??" or I get: "well, it can't hurt you, but I don't believe it them".

So I'm not asking his neuro when to start him on B-12.

I'd just like to know when you think he should start....


Thanks,

Melody