Hi WVKayaker
Your story is similar to mine, the difference is that I have gone throught a long list of doctors and tests.

I am not a doctor, but to me it sounds like you ought to get a rheumatologist to. All thees joint pains. I have learned from my doctors, personal experience and research that very oten it happens that many of the bloodtests shows up negative, sometimes false negative. Somtimes the tests needs to be repeated over and over. Theese conditions like neuropathy and rheumatoid arthritis and other autoimmune disorders flares and have remission. There are a lot of autoimmune disorders that has your symptoms. Neuropathy can be caused by arthritis and so many other autoimmune disorders.
My symptoms started with first small burning pain in legs for months, then I got all kinds of symptoms, vasculitis included. The jointpain that I will describe as migratory pain, because I had 2 extreme episodes of flares that moves from one joint to another all over.At the same time I had burning pain that ,just like you, went all over, face and scalp included. I had 2 episodes at first treated with Medrol Dose Pack, steroid. Then the rheumatologist started me on immunosuppresive meds, and sometimes with flare ups, I have some Prednisone.
So, all this time, 1 1/2 year now, my rheumatologist has tried to find different causes for my terrible neuropathy.
It sounds like you have Small Fiber Neuropathy. That is was causes the burning pain in your cutanous tissue.
You should have a real good neurologist to refer to. See if you can find one at the nearest teaching hospital where you live.
Get one that specializes in Neuropathy.
There is medication that can help the pain, but it is important to to try to find the cause, so the underlying condition can be treated.

You also should have the neurologist do a punch biopsy to check for and/ proove the case of Small Fiber Neuropathy.
My rheumatologist just told me now thar she think that the rheumatoid arthritis can have been the cause of the neuropathy, together with the vasculitis
I wish you all the best

I read your post over again, and now I see that you did see a rheumatologist.
Perhaps, if you did not like this doctor, there might be another good one in your era?
And I would insist with the PCP that you have a neurologist on the case working with you. If your regular doctor does not agree, then perhaps you should find another primary care doctor.
There are many good smart people on this board that will give you some links to good references on neuropathy.